News

Katie & Pete’s Story: Navigating Financial Challenges Following a Glioblastoma Diagnosis Katie M. sat anxiously in the Cleveland-area hospital alongside her husband, Pete, who had been recently diagnosed with a brain tumor. A million thoughts ran through her head as Pete was in the ICU awaiting surgery in June 2018. A shrill ring interrupted her thoughts — her husband’s boss, from the architecture firm he worked […] October 4, 2022

Philadelphia Firefighter with Glioblastoma Blazes Ahead for Research Credit: Clem Murray / The Philadelphia Inquirer Sirens blared as firefighters descended upon Philadelphia Energy Solutions, the largest gasoline refinery complex on the East Coast, following a series of explosions in June 2019. Linda Long joined more than 100 Philadelphia firefighters to combat the blaze that took more than 24 hours to extinguish.  “I got […] August 11, 2022

Q&A: A New Treatment Approved for Certain Brain Tumors In late June 2022, the U.S. Food and Drug Administration (FDA) granted accelerated approval to a new treatment combination that will now be available as an option for certain brain tumor patients. The approved combination of two oral drugs, called dabrafenib (brand name: Tafinlar) and trametinib (brand name: Mekinist), is for the treatment of advanced tumors […] August 9, 2022

Turning Lemons into Lemonade After a Glioblastoma Diagnosis “Get your ice-cold lemonade!” These words reverberated through the air outside the Yale School of Medicine as Claire and Molly Lindenbach tried to garner sales for their “Lemon-Aid” Stand. The unusual sight attracted the attention of students and professionals working in the area.  Only four months earlier, Claire and Molly’s dad, Brett, worked as a […] August 4, 2022

Guest Blog: My Dad’s Diagnosis Continues to Bring Our Family Together My father, Urbano, was the first in his family to come to the U.S. in the late ’70s from his hometown in Tequila, Mexico. From as far back as I can remember, he has always put family first. My childhood memories are focused around big family events because everything was a cause for celebration. The most […] July 20, 2022