Public Policy and Advocacy Updates From May 2018 Below are highlights of news and developments in the brain tumor advocacy and public policy, compiled by NBTS Research & Advocacy Manager, Kacey Troy Ribnik, and Director of Advocacy, Lainey Titus Samant: Brain Tumor Awareness Month (BTAM) 2018 was a very busy, productive, and successful month for the NBTS public policy advocacy program, all our wonderful volunteer advocates […] June 4, 2018
Glossary Blog, May 2018: Biospecimens and Biorepositories Biorepository: A facility that collects, catalogs, stores, manages, and distributes samples of biological material, such as urine, blood, tumor tissue, cells, DNA, RNA, and protein, from humans, animals, or plants for laboratory research. Biospecimen: Samples of material, such as urine, blood, tissue, cells, DNA, RNA, and protein from humans, animals, or plants. Biospecimens are stored […] May 30, 2018
First-of-its-kind Briefing for Congress on Glioblastoma On the heels of our annual advocacy day on Capitol Hill in Washington, D.C., Head to the Hill, where we bring volunteers from across the country to speak with members of Congress about the policies and bills that the brain tumor community would like to see policymakers support, National Brain Tumor Society (NBTS) held a […] May 22, 2018
Head to the Hill 2018: Brain Tumor Advocates Raising Their Voice The weather report in D.C. threatened rain during this year’s Head to the Hill 2018. And yet, the weather held for over 200 advocates coming from 38 states and Washington, D.C. Many of our advocates joined 457 teams and 350 brain tumor survivors on the May 6, Race for Hope DC. The 21st year of this […] May 14, 2018
March 2018 Public Policy and Advocacy Updates For a number of years now, our Public Policy & Advocacy staff have put out monthly emails to those who’ve signed-up to be NBTS volunteer advocates, providing updates on the latest goings-on in the world of brain tumor public policy and issues related to legislation that impacts this community. As our advocacy program continues to […] March 30, 2018