News

Head to the Hill 2018: Brain Tumor Advocates Raising Their Voice The weather report in D.C. threatened rain during this year’s Head to the Hill 2018. And yet, the weather held for over 200 advocates coming from 38 states and Washington, D.C. Many of our advocates joined 457 teams and 350 brain tumor survivors on the May 6, Race for Hope DC. The 21st year of this […] May 14, 2018

The Neuroscientist Who Lost Her Mind: A Journey to the Brink and Back National Brain Tumor Society Advocate and GBM patient, Adam Hayden, talks hope, clinical trials, and survivorship with neuroscientist and author Barbara Lipska. The following has been edited for length, format, and clarity. > Read the full-length version of his reflections on his conversation with Dr. Lipska Introduction Barbara Lipska, PhD, director of the Human Brain […] April 4, 2018

March 2018 Public Policy and Advocacy Updates For a number of years now, our Public Policy & Advocacy staff have put out monthly emails to those who’ve signed-up to be NBTS volunteer advocates, providing updates on the latest goings-on in the world of brain tumor public policy and issues related to legislation that impacts this community. As our advocacy program continues to […] March 30, 2018

A Pioneer’s Story: Years of Discoveries and Commitment to Brain Tumor Patients When the National Brain Tumor Society’s legacy organizations – The Brain Tumor Society (BTS) and the National Brain Tumor Foundation (NBTF) – were founded in the 1980’s, brain tumor research was still, in essence, in its infancy. Very little was understood about the underlying biology of these tumors or, subsequently, how to treat them. Thus, […] December 21, 2017

Recapping Head to the Hill 2017 They came from 38 states. 308 brain tumor patients, caregivers, and supporters made their way to our nation’s capital to advocate for policies that will benefit the brain tumor community as part of Head to the Hill 2017. Despite high-profile and contentious debates happening on Capitol Hill, NBTS and our advocate were determined to ensure Congress […] May 16, 2017