News

I’m Possible: A Pediatric Brain Tumor Patient and Hero Our family was no stranger to cancer. My mother fought with it, five times throughout her life, before it finally took her from us. It still makes my stomach do flips. My father-in-law is constantly battling the skin cancer that loves to attack fair-skinned redheads. Yet, to have our son diagnosed with a brain tumor […] September 25, 2018

Guest Blog: Team Theo – Moving On From Medulloblastoma and Paying It Forward I thought we would never face a challenge bigger than infertility. I look back now and realize how our journey to parenthood could have been a lot more difficult, but, at the time, it felt torturous. Then, we found our joy…IUI worked and we were expecting a baby boy. We had no idea what was […] September 17, 2018

CCAM Guest Blog: Luke’s Story ‘Your son has an egg sized tumor on his brain’. These are the words I heard on August 1, 2016, and these are the words no parent ever thinks they will hear. Seven days prior, my then 15-month old son, Luke, had woken in the morning and vomited. My husband and I thought he was […] September 3, 2018

Public Policy and Advocacy Updates From May 2018 Below are highlights of news and developments in the brain tumor advocacy and public policy, compiled by NBTS Research & Advocacy Manager, Kacey Troy Ribnik, and Director of Advocacy, Lainey Titus Samant: Brain Tumor Awareness Month (BTAM) 2018 was a very busy, productive, and successful month for the NBTS public policy advocacy program, all our wonderful volunteer advocates […] June 4, 2018

Glossary Blog, May 2018: Biospecimens and Biorepositories Biorepository: A facility that collects, catalogs, stores, manages, and distributes samples of biological material, such as urine, blood, tumor tissue, cells, DNA, RNA, and protein, from humans, animals, or plants for laboratory research. Biospecimen: Samples of material, such as urine, blood, tissue, cells, DNA, RNA, and protein from humans, animals, or plants. Biospecimens are stored […] May 30, 2018