News

Pediatric Ependymoma Patient’s Attitude Inspires Community Two-year-old Kevin M. lies in his hospital bed watching his beloved Puppy Dog Pals show, oblivious to the monitors beeping around him as a pediatric patient with ependymoma. His parents, Danielle and Duane, are nearby, trying to keep the toddler entertained between the pokes and prods that come with being in the hospital. Kevin’s nurse […] September 28, 2023

Mother Advocates for Improved Clinical Trial Access After Daughter’s Brain Tumor Diagnosis Whether hiking through trails perched atop twenty-foot cliffs or touching live sharks and stingrays, middle schooler Ava Q.E. was fearless — always volunteering to go first, thanks to her adventurous personality. It was a shock when Ava started repeatedly losing her vision for 5-10 seconds each time she stood up.  Her eye doctor ordered an […] September 19, 2023

From Classroom to Hospital Room: Elsa Navigates School After Diagnosis Elsa’s life took an unexpected turn on Feb. 15, 2019, when she began experiencing flu-like symptoms, severe headaches, and high fevers. As a six-year-old, her family assumed it was a typical childhood illness. However, when her condition worsened, and she experienced paralysis on her left side and vision loss, they knew something was seriously wrong.  […] September 18, 2023

Beloved Stuffed Animal Provides Comfort to Jacob and His Family Five-year-old Jacob M. clutched his beloved Mr. Puddles — a tuxedo cat stuffed animal that traveled everywhere Jacob went — as he walked back for radiation. Mr. Puddles provided comfort to the little boy during his many appointments after he was diagnosed with diffuse intrinsic pontine glioma (DIPG). With Mr. Puddles beside him, Jacob never […] May 17, 2023

New Approval of Treatment for Young Children with Certain Brain Cancers On March 16, 2023, the U.S. Food and Drug Administration approved a new treatment combination that will now be available as an option for pediatric patients 1 year of age and older with low-grade glioma (LGG, grade 1 or 2) that have a mutation called BRAF V600E. This marks the first FDA approval of a […] March 21, 2023