News

Beloved Stuffed Animal Provides Comfort to Jacob and His Family Five-year-old Jacob M. clutched his beloved Mr. Puddles — a tuxedo cat stuffed animal that traveled everywhere Jacob went — as he walked back for radiation. Mr. Puddles provided comfort to the little boy during his many appointments after he was diagnosed with diffuse intrinsic pontine glioma (DIPG). With Mr. Puddles beside him, Jacob never […] May 17, 2023

New Approval of Treatment for Young Children with Certain Brain Cancers On March 16, 2023, the U.S. Food and Drug Administration approved a new treatment combination that will now be available as an option for pediatric patients 1 year of age and older with low-grade glioma (LGG, grade 1 or 2) that have a mutation called BRAF V600E. This marks the first FDA approval of a […] March 21, 2023

Guest Blog: Training for a Marathon Brought Me Back After My Son’s Brain Tumor Diagnosis Earlier this year, I joined a team of 50 Gray Nation Endurance®️ athletes training to run in the 2022 NYC Marathon to raise critical funds for the National Brain Tumor Society. Training for the marathon was just what I needed to survive as a caregiver. It’s surreal to look back at the past year and […] November 18, 2022

Pediatric Brain Tumor Survivor Shares Story at the Colorado Brain Tumor Walk & Run “Thomas the Tank Engine” — the TV show about a blue train with red piping — captured the heart of a young boy named Cole at an early age. When the life-sized Thomas the Tank Engine pulled up on the track at the Durango & Silverton Narrow Gauge Railroad in Colorado, 2-year-old Cole stood in […] September 26, 2022

How to Talk to Kids About Their Brain Tumor Diagnosis “Your child has a brain tumor.” It’s a phrase no parent wants to hear, yet approximately 5,900 families will receive the news in 2022 alone.  This Childhood Cancer Awareness Month, NBTS is sharing stories from families in the brain tumor community. NBTS asked four families, “When faced with a brain tumor diagnosis, how did you […] September 16, 2022