Guest Blog: Training for a Marathon Brought Me Back After My Son’s Brain Tumor Diagnosis Earlier this year, I joined a team of 50 Gray Nation Endurance®️ athletes training to run in the 2022 NYC Marathon to raise critical funds for the National Brain Tumor Society. Training for the marathon was just what I needed to survive as a caregiver. It’s surreal to look back at the past year and […] November 18, 2022
Pediatric Brain Tumor Survivor Shares Story at the Colorado Brain Tumor Walk & Run “Thomas the Tank Engine” — the TV show about a blue train with red piping — captured the heart of a young boy named Cole at an early age. When the life-sized Thomas the Tank Engine pulled up on the track at the Durango & Silverton Narrow Gauge Railroad in Colorado, 2-year-old Cole stood in […] September 26, 2022
How to Talk to Kids About Their Brain Tumor Diagnosis “Your child has a brain tumor.” It’s a phrase no parent wants to hear, yet more than 5,200 families will receive the news in 2023 alone. This Childhood Cancer Awareness Month, NBTS is sharing stories from families in the brain tumor community. NBTS asked four families, “When faced with a brain tumor diagnosis, how did […] September 16, 2022
Q&A: A New Treatment Approved for Certain Brain Tumors In late June 2022, the U.S. Food and Drug Administration (FDA) granted accelerated approval to a new treatment combination that will now be available as an option for certain brain tumor patients. The approved combination of two oral drugs, called dabrafenib (brand name: Tafinlar) and trametinib (brand name: Mekinist), is for the treatment of advanced tumors […] August 9, 2022
New Brain Tumor Clinical Trials: January – June 2022 It can be hard to keep track of new clinical trial opportunities opening across the United States. There are many clinical trials actively enrolling patients, and this report provides a summary of the studies that have recently opened or started for primary brain tumor patients*. To learn more about each trial, and to contact the […] July 5, 2022