News

Pediatric Ependymoma Patient’s Attitude Inspires Community Two-year-old Kevin M. lies in his hospital bed watching his beloved Puppy Dog Pals show, oblivious to the monitors beeping around him as a pediatric patient with ependymoma. His parents, Danielle and Duane, are nearby, trying to keep the toddler entertained between the pokes and prods that come with being in the hospital. Kevin’s nurse […] September 28, 2023

Beloved Stuffed Animal Provides Comfort to Jacob and His Family Five-year-old Jacob M. clutched his beloved Mr. Puddles — a tuxedo cat stuffed animal that traveled everywhere Jacob went — as he walked back for radiation. Mr. Puddles provided comfort to the little boy during his many appointments after he was diagnosed with diffuse intrinsic pontine glioma (DIPG). With Mr. Puddles beside him, Jacob never […] May 17, 2023

Guest Blog: Training for a Marathon Brought Me Back After My Son’s Brain Tumor Diagnosis Earlier this year, I joined a team of 50 Gray Nation Endurance®️ athletes training to run in the 2022 NYC Marathon to raise critical funds for the National Brain Tumor Society. Training for the marathon was just what I needed to survive as a caregiver. It’s surreal to look back at the past year and […] November 18, 2022

How to Talk to Kids About Their Brain Tumor Diagnosis “Your child has a brain tumor.” It’s a phrase no parent wants to hear, yet more than 5,200 families will receive the news in 2023 alone.  This Childhood Cancer Awareness Month, NBTS is sharing stories from families in the brain tumor community. NBTS asked four families, “When faced with a brain tumor diagnosis, how did […] September 16, 2022

New Treatment Approved for Certain Glioma Patients On June 22, 2022, the U.S. Food and Drug Administration (FDA) granted accelerated approval to a new treatment combination that will now be available as an option for certain brain tumor patients. The FDA approved the combination of two oral drugs called dabrafenib (brand name: Tafinlar) and trametinib (brand name: Mekinist) for the treatment of advanced tumors […] June 28, 2022