News

Announcing the Ependymoma Fund for Research & Education Dear Friend of the Brain Tumor Community, We write to share with you that the Collaborative Ependymoma Research Network (CERN) Foundation and the National Brain Tumor Society (NBTS) have entered into a formal collaborative effort to raise financial support for ependymoma research and education. Statistically rare, ependymomas occur in both adults and children and, unfortunately, […] December 17, 2019

Celebrate the Victories, No Matter How Small The brain tumor charity, StacheStrong, announced through their Instagram account that they had signed a partnership with the National Brain Tumor Society (NBTS) to contribute toward a total $500,000 award to help support the GBM AGILE Adaptive Clinical Trial. “I almost wasn’t going to post the announcement to Instagram,” Colin Gerner, the founder of StacheStrong, […] May 17, 2019

Guest Blog: My Son Has Brain Cancer My son has brain cancer. And while the rest of the world sees a kind, smart, always-smiling, makes-you-laugh-so-hard-wine-shoots-out-of-your-nose 30-year-old man, I see something else. I see the baby who smelled like warm buttered toast when he was curled up in my arms those first few months of his life. I see the toddler who carried […] May 13, 2019

This Is Your House: Head to the Hill 2019 We declared Brain Tumor Awareness Month 2019 as Brain Tumor ACTION Month (BTAM). As part of our effort to not only raise awareness, but to drive action that results in positive change for the brain tumor community, we themed the first week of BTAM as “Public Policy Advocacy Week” as we held our annual Head […] May 10, 2019

Public Policy and Advocacy Updates From May 2018 Below are highlights of news and developments in the brain tumor advocacy and public policy, compiled by NBTS Research & Advocacy Manager, Kacey Troy Ribnik, and Director of Advocacy, Lainey Titus Samant: Brain Tumor Awareness Month (BTAM) 2018 was a very busy, productive, and successful month for the NBTS public policy advocacy program, all our wonderful volunteer advocates […] June 4, 2018