Sights & Sounds: Glioblastoma Awareness Day (#GBMDay) 2020 Perhaps Dr. Ned Sharpless, Director of the National Cancer Institute, summed up Glioblastoma (GBM) Awareness Day 2020 best when he said during NBTS’s Defeating GBM: A Virtual Town Hall event, “Events like this are really important to re-energize the community so we can join together and make progress in a disease that where progress has been […] July 23, 2020
Reflections on the Two-Year Anniversary of The Childhood Cancer STAR Act Two years ago, I stood in the Oval Office and watched as the Childhood Cancer STAR Act was signed into law. Observing this historic moment, I thought of the thousands of advocates, organizations, and children who worked tirelessly to support this legislation. From the first roundtable with the Alliance for Childhood Cancer, Coalition Against Childhood […] June 5, 2020
[RECAP] Brain Tumor Awareness Month 2020 Brain Tumor Awareness Month 2020 was bound to be a little different. The unprecedented nature of the COVID-19 public health crisis upended daily life for all Americans, including the brain tumor community, where the impact cut many ways. However, what we saw these past 31 days has been remarkable (if not completely unexpected). Despite many […] May 31, 2020
Update on the Impact of COVID-19 and NBTS Events & Activities Updated: March 19, 2020 New Resource Added: COVID-19: What the Brain Tumor Community Needs to Know Dear Brain Tumor Community, Due to ongoing concerns related to the outbreak of the novel coronavirus (COVID-19), the U.S. Centers of Disease Control and Prevention (CDC) has issued updated guidance for community and mass gatherings and is now asking […] March 11, 2020
Announcing the Ependymoma Fund for Research & Education Dear Friend of the Brain Tumor Community, We write to share with you that the Collaborative Ependymoma Research Network (CERN) Foundation and the National Brain Tumor Society (NBTS) have entered into a formal collaborative effort to raise financial support for ependymoma research and education. Statistically rare, ependymomas occur in both adults and children and, unfortunately, […] December 17, 2019