Public Policy and Brain Tumor Advocacy Updates From September 2018 Below are highlights of news and developments in brain tumor advocacy and public policy compiled by NBTS Research & Advocacy Manager Kacey Troy Ribnik and Director of Advocacy Lainey Titus Samant: New Increases for Medical Research Funding Congress recently passed a Fiscal Year 2019 (FY19) spending bill that includes increased funding for medical research. This action continues a […] October 3, 2018
#WhyNotDevin: Turning Pain into Hope for Families Christine Suau shares the story of her son, Devin, and the nine months her family spent treating his brain tumor. She talks about the rallying of a country to the cause of curing DIPG with the #whynotdevin social media campaign, the cost of care, and doing more for brain tumor research and families facing this […] September 28, 2018
Guest Blog: A Quest for Cures, Twenty Years in the Making Rachel Schultz recently joined the National Brain Tumor Society as our new Director of Development for the New England Region. The following is her story of why she joined the fight. August 9, 2016 is the last time I saw my wonderful, kind, caring, lovable, singing-in-falsetto, Boston-sports-loving father alive. On August 11, he passed away at the age […] August 22, 2018
Public Policy and Advocacy Updates From May 2018 Below are highlights of news and developments in the brain tumor advocacy and public policy, compiled by NBTS Research & Advocacy Manager, Kacey Troy Ribnik, and Director of Advocacy, Lainey Titus Samant: Brain Tumor Awareness Month (BTAM) 2018 was a very busy, productive, and successful month for the NBTS public policy advocacy program, all our wonderful volunteer advocates […] June 4, 2018
Head to the Hill 2018: Brain Tumor Advocates Raising Their Voice The weather report in D.C. threatened rain during this year’s Head to the Hill 2018. And yet, the weather held for over 200 advocates coming from 38 states and Washington, D.C. Many of our advocates joined 457 teams and 350 brain tumor survivors on the May 6, Race for Hope DC. The 21st year of this […] May 14, 2018