News

Update from the Capital: Government Developments NBTS is currently working to better understand the impact of any of the recent actions and directives announced by the new Administration as it relates to brain tumor research and care at the National Institutes of Health (NIH) and other related federal agencies. This is a developing situation, and new updates are being reported daily […] January 29, 2025

National Brain Tumor Society Celebrates the Introduction of the Bipartisan Bolstering Research and Innovations Now (BRAIN) Act in Congress Landmark legislation aims to invest in research, foster collaboration, improve survivorship and quality of life, and raise awareness of key treatment considerations National Brain Tumor Society, the largest patient advocacy organization in the United States committed to curing brain tumors and improving the lives of patients and families, is proud to share that a once-in-a-generation […] July 23, 2024

Neuro-oncologist Advocates for Brain Tumor Community at Head to the Hill After three years of attending Head to the Hill virtually due to the pandemic, neuro-oncologist Dr. Nicholas Blondin is counting down the days to the event’s return in person to Capitol Hill this May 8-9. As a neuro-oncologist and the lead principal investigator of GBM AGILE at Yale Cancer Center and Smilow Cancer Hospital, Dr. […] March 27, 2023

Son Advocates on Capitol Hill to Honor Mother Nearly one year after losing his mom to glioblastoma (GBM), Shawn joined his brother and father in D.C. for Head to the Hill 2019. Their experience would prove to be powerful and energizing for their grieving family. “Attending Head to the Hill our first year was all about sharing my mom’s story after she passed […] February 16, 2023

Advocate Pushes for Improved Quality of Life and Increased Research Funding A busy working mom, Jyothi was no stranger to shuttling her two boys around for school and extracurricular activities. Her youngest son, Nitin, began complaining of headaches after playing tennis and also started to experience difficulties blowing to play his clarinet. A pediatrician suggested a CT scan to rule out anything more serious. “It was […] January 31, 2023