NBTS Brain Tumor Clinical Trials Report: Q1 2021 It can be hard to keep track of new clinical trial opportunities opening across the United States, especially during the current public health crisis created by the coronavirus (COVID-19). However, there are many clinical trials still actively enrolling patients, and this report provides a summary of the studies that have recently opened or started for […] April 8, 2021
Reflections on the Two-Year Anniversary of The Childhood Cancer STAR Act Two years ago, I stood in the Oval Office and watched as the Childhood Cancer STAR Act was signed into law. Observing this historic moment, I thought of the thousands of advocates, organizations, and children who worked tirelessly to support this legislation. From the first roundtable with the Alliance for Childhood Cancer, Coalition Against Childhood […] June 5, 2020
September Superstars Shine Bright During Childhood Cancer Awareness Month Thank you for joining us throughout the month of September to honor and support children and families that have been affected by pediatric brain tumors, the leading cause of cancer-related death in children, as well as the most commonly diagnosed cancer in children 14 years old and younger. It’s clear the brain tumor community has […] September 30, 2019
Can Newly Approved “Tissue Agnostic” Drugs Benefit Pediatric High-grade Glioma Patients? Recently, the U.S. Food and Drug Administration (FDA) granted accelerated approval* to the drug Rozlytrek (entrectinib, Genentech/Roche**) as a treatment for patients, 12 years or older, whose tumors have a specific genetic defect known as an “NTRK gene fusion.”*** This is now the second drug that the FDA has approved to treat patients with this […] September 16, 2019
Guest Blog: “I would have given anything to trade places with him” On a family vacation in 2011, Mac tried to catch a seagull. Using his boogie board to shield his movements, he inched his way across the sand, closing on his target. With the determination and strong-will that defined him, Mac patiently stalked his target for 20 minutes, taking great care with each step as to […] September 5, 2019