News

Introducing the NBTS Personalized Support and Navigation Program For years, the National Brain Tumor Society has offered our assistance to patients and caregivers who’ve reached out in need of support, guidance, and/or other resources to help navigate a brain tumor diagnosis and the subsequent treatment experience. While a number of sources for direct patient services exist for brain tumor patients, our new NBTS […] April 17, 2020

From the CEO’s Desk: A New Year’s Message Dear Friend, Thank you so much for all you have done this past year to reach our shared vision of conquering and curing brain tumors — once and for all. Your financial support, time, advocacy, and community leadership has resulted in making 2019 truly a year of progress. National Brain Tumor Society’s strategy to realize […] January 6, 2020

Announcing the Ependymoma Fund for Research & Education Dear Friend of the Brain Tumor Community, We write to share with you that the Collaborative Ependymoma Research Network (CERN) Foundation and the National Brain Tumor Society (NBTS) have entered into a formal collaborative effort to raise financial support for ependymoma research and education. Statistically rare, ependymomas occur in both adults and children and, unfortunately, […] December 17, 2019

Can Newly Approved “Tissue Agnostic” Drugs Benefit Pediatric High-grade Glioma Patients? Recently, the U.S. Food and Drug Administration (FDA) granted accelerated approval* to the drug Rozlytrek (entrectinib, Genentech/Roche**) as a treatment for patients, 12 years or older, whose tumors have a specific genetic defect known as an “NTRK gene fusion.”*** This is now the second drug that the FDA has approved to treat patients with this […] September 16, 2019

Fundraising Gets Personal for Two-Time Meningioma Survivor The First One: 2012 “It happened really, really quickly,” says Sharon Mottola of when she was first diagnosed with a meningioma brain tumor in 2012. Sharon, a registered nurse working at a North Carolina healthcare facility, had been experiencing chronic déjà vu for some time and decided to use her proximity to her primary care […] August 23, 2019