Brain Tumor Survivor

Hi, my name is Lisa Joerling, and my brain tumor journey began 11 years ago when I was diagnosed with a ganglioglioma brain tumor at just 19 years old. I was a sophomore at Kansas State and was home for the summer working at a youth summer camp. 

One morning, I woke up and my entire right side was numb from my foot to my mouth. A trip to the ER revealed the golf ball-sized tumor, and I was admitted to the ICU that evening. After a biopsy, I had an awake craniotomy to remove the tumor that was pressing on the motor/sensory strip affecting the function of my right hand. 

After surgery, I went to occupational therapy to regain function in my hand, and although it was difficult, I was able to return to college just eight weeks after surgery. I graduated on time with my elementary education degree and have since gone on to earn my master’s. I am currently on a watch and wait protocol and get yearly scans. 

I have spent the last years helping advocate for brain tumor funding and research and supporting survivors like myself. I have learned how important taking care of your mental health is, especially after such a life-changing diagnosis. Although this journey has been difficult, it has also given me many opportunities to connect with others and have a level of gratitude that many do not get.

TAGGED WITH: ganglioglioma

Opinions expressed within this story belong solely to the author and do not reflect the views or opinions of the National Brain Tumor Society.