However, December 2017 was when growth was noted, and so I am back on Temodar and steroids. This time, it’s just harder. I have a 10 year old daughter and an 8 year old son, and I am so worried about them and about how my wonderful husband will be able to parent if I am significantly disabled or dead from this. If the chemo isn’t effective is stopping the growth, the next step is radiation, and side effects on my left temporal lobe, where the tumor is located, will affect my speech even more and probably my memory.
I hope for the best, but work to be prepared for reality. I am grateful for my neuro-onc team and seizure team, and for friends and family who have stepped up in ways I didn’t ever know I would need. I hope for the most high quality time with my kids as possible, and am trying to take care of myself during this 16 month chemo adventure I am on now.