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I think that I have the biggest arachnoid cyst in the world.

Published on January 12, 2021 in Share Your Story

I have been an active and bold person my whole life, and at the age of 35, my life changed forever.

I work in construction and was working for a friend of mine who owned a commercial Guttering company. I was operating a lift while installing downspouts and baffles on a four story building. Baffles regulate how much water can come off the building at a time. I was up in the bucket operating the lift and felt fine the whole day.

I finished my work and was putting away the ladders and tools and stopping for the day. I went to put away the last extension ladder and a big gust of Oklahoma wind came up and I hurt my back trying to stop the ladder from falling.

My boss made my go to the emergency room and get checked out. When I went to the hospital in horrible pain I never realized how my life was about to change. I thought that I had passed out but when I woke up they said that I had two gran-mal seizures. They asked what seizure medicine I had been taking. I told them that I do not have seizures and they said that I had just had two. I did not believe them and so I got up and drove myself home.

I live alone, just me and my dog Duke, and while eating dinner and watching TV, I woke up on the floor and the dog was freaking out.

I went and had a brain scan and was told that I have an arachnoid cyst on my brainstem measuring 7cm x 7cm x 5cm.

From January 2000 until 2003 I had seven brain surgeries – two while I was awake and five while I was asleep. This next month will be 21 years ago since this happened.


Opinions expressed within this story belong solely to the author and do not reflect the views or opinions of the National Brain Tumor Society.

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