It was April 2010, my daughter was diagnosed with GBM. She had surgery. Came home, and between friends and family we took care of her. She had been a teacher, and her husband a fireman.
We live in northern Calif. in the foothills of the Serria Nevada mountains. Before they were married they were river guides on the South Fork of the American River. Their rafting friends formed a group to help. anything from cooking, taking the boys to school. Dr. appts. I have never seen anything like it! She lived for 1 and a half years. She also did a trial with an eight pound pack on her back and electrodes on her head. She was so brave. Also she had 2 boys. 4&7.
I thought it was over!! Why her, and not me. She was 43. She was also my best friend. The main thing I learned was compassion. Also patience. She once said “I haven’t gotten to the why me yet”. And she never did.
This is the first I’ve replied. I found some grief groups in town. One was for sudden loss, because I lost my son in a car accident 6 months before she died. They were a big help. And Alive & Alone . The couple who started it had lost their only child. I guess it was GRIEF that kept me from responding. I hope to do better.
Just thinking about her. Always a sad time. Glad there are other families who know we support them, and we don’t feel so alone. Well I am grey and I have a grey bracelet.
Well, I think my daughter dealt with it better than me. People don’t know what to say, so they say nothing. I’m not afraid to talk about them. In fact I love hearing stories about them. The brain tumor experience was a very giving experience. I learned so much about her from the group that helped, and never stopped caring. In fact when Hospice came they said they had never seen anything like it.
Now, I’m exhausted!
