In 2023, I was diagnosed with an 8-cm pituitary tumor, along with a rare disease called acromegaly, a growth hormone disorder. They believe that, due to my tumor’s size, it has been growing since I was about 18. I am now 32.
I underwent transsphenoidal pituitary surgery, where my surgeon was able to remove 75% of my tumor, but unfortunately, it spread into my carotid artery and was unable to be fully removed.
I have been working with an endocrinologist since I discovered my tumor. After surgery, I received an injection called lanreotide, which is used for the long-term treatment of acromegaly and can help slow the growth of the tumor.
The Tumor’s Impact
It really had a positive and negative impact on both me and my loved ones.
Positive because we all got answers to so many questions we had piled up over the years: Why is she always sick? Why is she always tired? What happened to Abby?
Negative because, of course, this is terrifying for anyone involved, and the unknown is so scary.
Life Today
Now, in 2025, I have managed to avoid radiation or additional surgery.
After trying the injections for a year and not receiving the results we wanted, I have been working with a new doctor who specializes in pituitary tumors and acromegaly in Boston to create a new treatment plan.
I receive MRIs every 6 months, eye exams every year, and blood work every 3 months to check my levels.
My case is considered rare, and more of it revolves around the acromegaly portion and trying to bring down and control my growth hormone levels, while monitoring my tumor, along with the placement of my tumor.
