No One Can Give You an Expiration Date

In December 2018, when my husband was diagnosed with glioblastoma, it was not just his life that was transformed, but the lives of our entire family, including our five children. Each child, ranging from four years old to a young adult, faced this crisis in their own unique way, adding layers of complexity to our family dynamics. We navigated through the challenges of maintaining normalcy for them while managing the medical turbulence.

As my husband embarked on treatments — chemotherapy, radiation, and later, the continuous use of the Optune device — our family’s routine centered around his health needs. Optune, particularly, became a part of his identity and ours. For 3.5 years, it was a constant companion in our lives, its buzz almost as familiar as the sounds of our children playing. This device not only fought the cancer cells but also served as a beacon of hope, its presence a daily reminder of our ongoing battle.

Living life in three-month increments between MRI scans taught us to find stability in the moment. The continuous cycle of hope and uncertainty was draining for me as a caregiver. The emotional rollercoaster often left me grappling with deep feelings of grief and exhaustion, reflecting a journey shadowed by the fear of loss. During this time, I, too, had to learn self-care and seek support, understanding that preserving my own well-being was crucial for supporting my husband and our children.

My husband wrestled with bouts of depression, an often-understated companion of serious illness. The mental struggle of living with a cloud of unknowns was as taxing as the physical battle. As a family, we strived to address these emotional undercurrents openly, reinforcing that it was okay not to be okay and encouraging professional support when needed.

Despite these challenges, our family’s journey has been one of immense growth. We have become champions of hope, not just for ourselves but for other families navigating similar paths. Sharing our story has become a way to extend a hand to those who might feel isolated in their struggles, providing a sense of community and mutual support.

Today, as I look at my thriving husband, I see more than a survivor; I see a beacon of resilience that inspires not just our children but every life he touches. This experience has fortified our family bonds and taught us the profound strength of love and the limitless power of hope amidst life’s greatest trials.

TAGGED WITH: glioblastoma

Opinions expressed within this story belong solely to the author and do not reflect the views or opinions of the National Brain Tumor Society.