I was the primary care giver and also worked fulltime with intermittent FML. I tried to get assistance and help but was unable to until he was placed in Hospice just a couple weeks before he passed.
Because of COVID I was able to stay at home and care for my husband more. My day never ended. I was frustrated, mad that I could not get help and was burned out. From what I was able to research brain tumors, there are only 5 FDA approved drugs, estimated 5yr survival rate of 7.2% and for medial survivor rate of 8mos. The estimated cost of treatment being $150,000.00.
This is truly sad that options and financial resources are limited for families that go through such a traumatic, life changing experience.