Skip to content
BACK to Stories

Two family members

Published on March 21, 2019 in Share Your Story

I had a meningioma removed 9 years ago. Last spring I started to have partial clonic seizures believed to be due to scar tissue. My tumor was an atypical grade 2 which can come back aggressively. I will have MRIs every six months for life. My 8 year grandson had emergency surgery on St. Patrick’s Day of this Year (2019) for a mendulloblastoma. He is still in intensive care a week later, when he has recovered he will have Proton Beam Radiation (PBR) treatment for 6 weeks, then more time to recover from that and then start chemo therapy. It is diagnosed that it will be a year for recovery. We are extremely lucky to live an hour from Boston, MA where I had my surgery and PBR. I understand that PBR (which minimizes damage to healthy brain tissue) is limited and not available to many because of the expense of building a PBR facility (there are very few throughout this country). It would be my hope that funding was available to make PBR available to all brain tumor patients. It is a much safer treatment, especially for children!


Opinions expressed within this story belong solely to the author and do not reflect the views or opinions of the National Brain Tumor Society.

Stay Informed & Connected