Collaborative Ependymoma Research Network (CERN)

CERN Impact Report
2006 – 2026

The CERN Foundation is celebrating 20 years of providing resources and support while advancing ependymoma research. Since becoming a program of the National Brain Tumor Society, the CERN Foundation has fueled over $1.3 million in dedicated ependymoma research. 

By bringing together international experts over the past two decades, CERN has:

• Defined the biology of ependymoma by uncovering 10 distinct molecular subgroups
• Established a new standard of care for recurrent ependymoma
• Funded early seed grants that led to multimillion-dollar federal research funding

Explore 20 years of breakthrough impact and learn how CERN continues to shape ependymoma research, resources, and support in our 2026 Impact Report.

About CERN Foundation

Established in 2006, the CERN Foundation is now a designated program of the National Brain Tumor Society dedicated to improving the lives of those affected with ependymoma. Thanks to the efforts of an international network of collaborators, the CERN Foundation has been responsible for the publication of over 60 peer-reviewed papers in leading medical journals. This body of research has greatly advanced our understanding of ependymoma and left a lasting legacy for future investigators to build upon.

Today, the CERN Program at NBTS continues to advance ependymoma research by supporting signature research projects, scientific fellowships, sponsoring professional conferences and symposia, and providing thought leadership in collaborative groups. We strive to bring awareness to the rare disease and improve the outcome and care of patients through education, referral support, and supported research efforts.

The CERN Foundation is currently engaged in a range of community outreach programs and support efforts designed to have a positive impact on the lives of children and adults living with ependymoma, as well as their families and caregivers.