Privacy Policy

NBTS Privacy Policy

Effective as of July 2021

Read the NBTS Terms and Conditions of Use

Our Commitment to Privacy

National Brain Tumor Society (“NBTS”) values your trust, and we understand the importance of protecting your privacy. We want to make sure you understand how your information is collected and used by NBTS. This privacy statement (“Privacy Statement”) describes what information we collect about you, including when and how we collect it; how we use it; with whom we may share it; and what choices you have regarding our use of your information.

This Privacy Statement applies to all information collected through your communications with NBTS, whether electronic, written or oral; information collected through mobile applications (“Apps”) or NBTS websites (“Sites”); as well as any other information about you that we may collect offline or receive from third-parties (collectively, social media tools, Apps, Sites, and offline or third-party information are referred to as the “Services”). By accessing our content and resources or providing your information to us, you accept and agree to the practices described in this Privacy Statement.

Because your privacy is important to us, we provide you with notices and choices about the collection and use of your information. To make these notices easy to find, links are provided from our homepage and donation webpages or other webpages that capture information about you. Each page that requests personally identifiable information reminds you of the importance of your privacy and provides a link to the Privacy Policy. By visiting an NBTS Website, you accept the practices described in this Privacy Notice. By visiting an NBTS Website and/or creating a profile (each an “NBTS Website”) or otherwise using our online resources,  you are agreeing to comply with and be bound by these Terms of Use. If you do not agree to these Terms of Use, you may not access or use our online resources.

Use of Cookies

We use cookies (small files that are sent to your Web browser and stored on your computer’s hard drive) to improve your Website experience. Cookies are used to speed up your access to the Website and the information you wish to see, but it does not contain any personal information. The majority of Web browsers accept cookies, but the “help” menu on your browser should give you options for blocking, accepting, or receiving notice of new cookies. However, please be aware that if you block cookies, some Website functionality may be lost.  By continuing to browse our website you consent to and accept the use of cookies.

Data Collection

National Brain Tumor Society wants you to know how we use and protect the important information you provide to us. This information summarizes our policy, procedures and practices.

We collect information as a way to further our mission of finding better treatments and ultimately a cure for brain tumors. The information you provide allows us to respond to your inquiries and to provide you with the information, resources, and assistance your request.

When we ask for certain types of sensitive information — such as health information or contact details—we will tell you how we intend to use and disclose that information. Additional information about how we collect, protect, and use information in our research, fundraising, outreach, education and other “offline” programs may be found at our Terms and Conditions statement.

We will use — and require any external vendors to use — reasonable and appropriate security practices to safeguard your information. By continuing to browse our website you consent to our collection and storage of your Personal Information (as defined below) for the limited purposes of NBTS’s fundraising and community outreach efforts.  You have the right at any time to withdraw your consent and request that your information be deleted.  If you change your mind about allowing us to store or use your information or have questions about our privacy practices, please use to let us know.

We collect personal information using various methods:

NBTS collects information that identifies you as an individual or information which is linked or linkable to you as an individual or household, which will collectively be referred to throughout this Privacy Statement as “Personal Information.” Personal Information may include but is not limited to contact information, demographic information, health and financial information, as well as call recordings and transcripts.

How We May Use Your Personal Information

Unless you tell us otherwise, when you provide your Personal Information and when we collect it you are agreeing to allow us to use and disclose it as allowed by law and NBTS policies to deliver the programs you are involved with, engage in communications with you (electronic or otherwise as consistent with the mission) and in furtherance of our overarching mission and programs. When we ask for certain types of sensitive information—such as health information—we will tell you how we intend to use and disclose that information if applicable.By using our website or providing NBTS your Personal Information, you understand and consent to the collection, processing, transfer, and use of information in the manner and for the purposes set forth in this Privacy Policy.

In addition to the other uses described in this section, we may also use your information as you expressly authorize us to do so.

Sharing Your Information with NBTS-approved Entities

Where necessary or where we have the right to do so, we will share your personal information internally and with NBTS-approved third parties including volunteers, business partners, suppliers and sub-contractors for mission delivery and advancement. NBTS will not sell, trade, or share your personal information obtained through our website(s) , direct mail or mailed-in donations, verbally, or any other online or offline means or methods – with anyone outside of NBTS staff, Board of Directors, or NBTS-approved volunteers or third parties  – without your consent – nor will NBTS send donor mailings or emails on behalf of another organization without your written permission to do so.We will always use—and require our data management vendors to use—reasonable and appropriate security practices to safeguard your information.

NBTS may share select Personal Information with:

Your Options

We respect your privacy and allow you to restrict internal and external sharing of your personal information. We recognize that you may wish to limit the ways in which we contact you and we offer the following options:

To inform us of any desired restrictions, please email us at If you contact us with an opt-out request, all reasonable efforts will be taken to ensure that you will not receive any of the selected communications from us in the future.  In addition, as noted elsewhere in this Privacy Statement, you have the option at any time to withdraw your consent for us to collect, store and share your Personal Information, and to have us delete it from our systems.  If you wish to exercise this option, please email us at


Upon request, we will provide you with the information we maintain about you so that you may request corrections. This information will be sent via postal mail, which we believe is the most secure method of communication. Please contact us by email at or in writing at:

National Brain Tumor Society
Security and Privacy Requests
55 Chapel Street, Suite 200
Newton, MA 02458

To protect your privacy and security, we will take reasonable steps to verify your identity before providing information or making corrections.

Data Security

We are committed to protecting the security of your personal information and to honoring your choices for its intended use. To prevent unauthorized access, maintain data accuracy, and ensure the correct use of information, we strive to maintain physical, electronic, and administrative safeguards.

We process your financial transactions securely using the Payment Card Industry Data Security Standard (“PCI DSS”). PCI DSS is the payment card industry security requirement for entities that store, process or transmit cardholder data, and has been endorsed by all the major card brands — Visa Inc., MasterCard Worldwide, Discover Network, American Express, and JCB. PCI DSS compliance gives consumers the confidence they need to know that organizations accepting electronic payments or donations are doing so in a verified, secure, and consistent fashion. Blackbaud and Classy, our software provider for online marketing and fundraising, received Level 1 PCI compliance – the highest level validation. This means that the processes, procedures, network configuration, and overall environment used to process your financial support of our organization have met the stringent guidelines of a third-party audit and are in compliance with the high standards set by the industry. This comprehensive standard is intended to help organizations such as ours proactively protect your account data – a responsibility we take very seriously.

Inside NBTS, data is stored in password-controlled servers. Our staff and volunteers are educated about the importance of safeguarding your information and we are committed to holding them accountable for protecting your confidentiality. We incorporate industry-standard security controls including firewalls and protocols including SSL to create a site that is resistant to standard internet-based threats. However, such precautions do not guarantee that our Website is invulnerable to all security breaks. NBTS makes no warranty, guarantee, or representation that the use of our Website is protected from viruses, security threats, or other vulnerabilities and that your information will always be secure.

Whenever NBTS permits an external third party to access personally-identifiable information, appropriate procedures are followed to help ensure that the information is used only for authorized purposes and by authorized persons in a manner consistent with the choices NBTS constituents have made under this statement, and that the security, integrity, and privacy of the information is maintained. While NBTS will employ procedures to help ensure that your information is only used for authorized purposes as described above, we cannot make any guarantees with respect to the actions or policies of such third parties.

To learn more about the security protocols of our software providers please see the links below:
Phone 2 Action:

Links within Our Website

Our privacy policies apply only to your use of the NBTS Website. This site contains links to other sites, including sites that have a special relationship with us. We do not disclose personal identifiable information to those operating linked sites and we are not responsible for their privacy practices. Links to other sites do not imply an endorsement of the materials or policies on those Websites. You should read the privacy policies of each site you visit to determine what information that site may be collecting about you.

Contact Us

This privacy statement will be updated periodically and posted on our Website. It applies only to our online practices and does not encompass other areas of the organization. It applies to the online practices of NBTS. References to “National Brain Tumor Society”, “NBTS”, “we”, “us” and “our” are references to National Brain Tumor Society and its affiliates, staff, and volunteers. We reserve the right to change this policy at any time by posting revisions. You agree to review the Privacy Policy and Terms of Use each time you use our Website so that you are aware of any modifications. By accessing or using the Website, you agree to be bound by all of the terms and conditions of the NBTS Privacy Policy as posted at the time of your access or use. If you have any questions about our policy or our compliance, you may send us an email at privacyrequest@braintumor.orgor write to:

National Brain Tumor Society
Security and Privacy Requests
55 Chapel Street, Suite 200
Newton, MA 02458