Collaborative Ependymoma Research Network (CERN)

The Collaborative Ependymoma Research Network (CERN) Foundation, a designated program of the National Brain Tumor Society, works to advance ependymoma research toward the development of new and better treatments for this rare brain and spinal cord tumor that impacts both adults and children. CERN is committed to improving the care and outcome of people with ependymoma through community support and research efforts.

About CERN Foundation

Established in 2006, the CERN Foundation is now a designated program of the National Brain Tumor Society dedicated to improving the lives of those affected with ependymoma. Thanks to the efforts of an international network of collaborators, the CERN Foundation has been responsible for the publication of over 60 peer-reviewed papers in leading medical journals. This body of research has greatly advanced our understanding of ependymoma and left a lasting legacy for future investigators to build upon.

Today, the CERN Program at NBTS continues to advance ependymoma research by supporting signature research projects, scientific fellowships, sponsoring professional conferences and symposia, and providing thought leadership in collaborative groups. We strive to bring awareness to the rare disease and improve the outcome and care of patients through education, referral support, and supported research efforts.

The CERN Foundation is currently engaged in a range of community outreach programs and support efforts designed to have a positive impact on the lives of children and adults living with ependymoma, as well as their families and caregivers.

2026 Ependymoma Awareness Day

20 Years of Awareness. One Shared Mission.

This Ependymoma Awareness Day, we recognize a monumental milestone as the CERN program at National Brain Tumor Society celebrates 20 Years of Ependymoma Advocacy and Research. Over the past two decades, our mission has been fueled by a decades-long dedication to patients, caregivers, and scientific breakthroughs. What began as a local effort has grown into a global movement united by hope and unwavering dedication. Together, we celebrate how far we have come and renew our commitment to accelerating research, advancing treatments, and improving outcomes for every patient.

A Brief History of Ependymoma – How Looking Back Can Help Create a Roadmap Forward

“It is fascinating to see how many famous doctors and scientists have conducted research on ependymoma at some point in their careers. The pathologist Rudolf Virchow, who is considered the father of modern medicine; the founders of the first systematic brain tumour classification, Harvey Cushing and Percival Bailey; and the famous physician Gustave Roussy, after whom one of Europe’s largest cancer centers is named; all studied ependymoma at some point in their careers. In ependymoma research, we stand on the shoulders of giants.”

— David Ghasemi, MD, MRes.

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Support the Ependymoma Research Fund

With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma. Gifts of all sizes help to advance our mission and fuel the breakthroughs we need to find a cure.

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Collaborative Ependymoma Research Network (CERN)