Hello My name is Ryan Domondon. I have a story to tell about my life and running with brain tumor, tubers, and seizures.
I was born with Tuberous Sclerosis. Tuberous Sclerosis is a rare genetic disorder that affects the skin, brain, nervous system, and heart. In addition to rashes, abnormal heart rhythm, and tumors on the brain and kidneys, tuberous sclerosis can cause serious, life-threatening seizures that can happen to me anywhere at any moment, including when I am running.
At the 2013 Gate River Run (USA), for example, I had a complex partial seizure. During mile seven, my heart started to beat very fast. My arms just rose by themselves. I could not tell where I was, I was zoned out, but I could hear everything around me.
Last year I ran the brain tumor run and came in first place overall.
Though it’s my courage, heart, and determination that ultimately have allowed me to not only persevere but progress, I couldn’t do it alone. I praise the support of my family, CFJAX Family, Verb Jax family and “running family” (PRS).