In 2014, I was diagnosed with two myofibrocystoblastic pseudotumors starting in my mastoids and progressing under my brain. Through two mastoidectomies to remove as much tumor as possible from under my brain and large doses of steroids the tumors stopped.
I was just informed December 2017 the tumors have just doubled in size in six months and moved into my brain. The only treatment left for me and my personal (I’m the only person with this type of tumor in the brain and I have two) tumor is radiation of course the oncologist says we are shooting in the dark with no other cases to go on we just have to pray, hope and see. Because of their location I may not remember much so I’ve decided to let every one know I am here today and if I don’t know you tomorrow please forgive my faulty memory.