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Advance Care Planning

Advance care planning is an important process for anyone facing a serious illness, including people with brain tumors and their care partners. It involves discussing and preparing for future decisions about medical treatment preferences and end-of-life care, ensuring that one’s wishes are respected and honored. There are several resources available to help individuals with brain tumors and their caregivers navigate the process of advance care planning.

Center for Practical Bioethics’ Caring Conversations
The Center for Practical Bioethics provides a Caring Conversations workbook to guide patients and their loved ones through the process of advance care planning and documenting their healthcare wishes.

Five Wishes
Five Wishes is a national advance care planning program that helps people document their personal needs and medical wishes for their families, care partners, and healthcare teams.

MyDirectives is a free online platform that helps people document and share their medical treatment wishes, their preferences around end-of-life care, their organ donation status, and other critical information. It provides thoughtful questions, educational tools, and guidance for advanced care planning.

The Conversation Project
The Conversation Project provides support to help everyone talk about their wishes for care through the end of life, so those wishes can be understood and respected.

Brain Donor Project
The Brain Donor Project helps people become future brain donors with the NeuroBioBank.

Children’s Brain Tumor Network
The Children’s Brain Tumor Network (CBTN) supports data-driven discovery and research of new prognostic biomarkers and therapies for children with pediatric brain tumors.

Gift from a Child
Gift from a Child is a national initiative that supports families facing the loss of a child to brain cancer who wish to donate their child’s post-mortem brain tumor tissue to research.

The NeuroBioBank is a national resource funded by the National Institutes of Health (NIH) for investigators to study post-mortem brain tissue for research of the nervous system.

Last updated April 3, 2023.
In listing a resource on this page, the National Brain Tumor Society does not endorse or guarantee their services or the quality of their services. If you have additional resources that you would like to recommend, please email our Community team at

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