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Brain Tumor Support Conversations

The Brain Tumor Support Conversations is an online support group run by the brain tumor community for the brain tumor community. This group is attended by patients who have had firsthand experience with the challenges and effects of a brain tumor diagnosis.

This support group is a welcoming space where patients can have honest, supportive discussions about the feelings and emotions that accompany any aspect of the brain tumor experience.

These online support group conversations are held on the third Sunday of each month from 7-8 p.m. ET/4-5 p.m. PT. After signing up with your email, you will receive a confirmation email, and it will allow us to stay in touch with you. For more information, see our privacy policy.

Upcoming Brain Tumor Support Conversations

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Facilitators

Trained NBTS Peer Facilitators host regular, open, and honest online support groups for the brain tumor community to connect with others on topics that matter to them.

Shawn Carey

Shawn Carey became a dedicated volunteer with the National Brain Tumor Society following the death of his mother, Wendy, due to glioblastoma in 2018. Nearly one year later, he joined his brother and father in Washington, D.C., for NBTS’s signature advocacy event, Head to the Hill. Since then, Shawn has remained an active volunteer with NBTS. He utilizes his professional background in public relations and communications to share his story to bring awareness and build connections to move the quality of care forward for patients with brain tumors and their care partners.

I believe one of the greatest opportunities a person can do in this life is to be of service to others. Walking alongside patients and families as they navigate a brain tumor diagnosis is a privilege and a demonstration of their trust that I take to heart. It’s a community where your experience is welcomed and your voice matters.
Shawn Carey

Lisa O’Leary

Lisa is a former care partner to her late husband Patrick, who passed from glioblastoma. Lisa’s formal and professional experience as a lawyer well suits her as a knowledgeable and engaged advocate, whose experience navigating the health care system as an advocate on behalf of her partner, and her personal journey of recovery after his loss, lends tremendous experience to others.

My husband, Patrick, was diagnosed with GBM in 2014. He died only 11 months after his first seizure. Widowed at 31, I felt lost and alone. It wasn’t until getting involved with NBTS that I started to feel useful again. I’m grateful my experience can offer support to this community.
Lisa O'Leary

Daniel Myers

Daniel Myers is a brain tumor survivor, patient advocate, and qualitative data analyst dedicated to bridging research and lived experience. Diagnosed with a grade 2 oligodendroglioma at age 26, he transformed a personal challenge into a commitment to advancing brain tumor research, advocacy, and quality-of-life initiatives.

Daniel works as a contractor with CU Anschutz on a Department of Defense funded action research program and serves on the Research Advisory Council and related projects of the Low Grade Glioma Registry.

Beyond research, he teaches voice and piano and performs as a classical musician throughout the Pacific Northwest.

When I was diagnosed with a brain tumor at 26 years old, I felt like my life was over. All I knew about brain tumors I had learned from TV and horror stories. Finding a community of people living with brain tumors was the most important step for me to begin moving forward. The chance to help others dealing with the uncertainty and loneliness that I experienced is a way for me to pay forward the kindness of so many excellent people that I have had the honor to meet along my way.
Lisa O'Leary

Brain Tumor Support Conversations

Upcoming Brain Tumor Support Conversations