Creating Change to
Last a Lifetime

Jordyn still lives with an inoperable astrocytoma in her brain. Her vision, memory, and emotional health have all been greatly impacted by her diagnosis. Yet, Jordyn strives to be a high-achieving student and selfless supporter of other kids with similar illnesses.

Creating Change to
Last a Lifetime

Drew Nealley earned every bit of his nickname, “Super Drew.” He was funny, creative, and full of life. That life, however, was cut way too short following the diagnosis of a pediatric glioblastoma. While he’s greatly missed, his friends and family now honor his legacy by raising funds to create change that may someday give families of pediatric brain tumor patients a lifetime’s worth of memories together.

Creating Change to
Last a Lifetime

Nitin Ramachandran was a star junior tennis player before a medulloblastoma diagnosis took him off the court. While he worked hard to recover his athleticism after his recovery from treatment, Nitin is unable to compete at the same level as before his diagnosis. Now, he gives back to help other children in similar situations.

Creating Change to
Last a Lifetime

After a diagnosis with the highly aggressive pediatric brain tumor, diffuse intrinsic pontine glioma (DIPG), the Musto family had only a handful of days to create a lifetime’s worth of memories for and with their five-year-old daughter, Maddie.

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What is Childhood Cancer Awareness Month?

September is Childhood Cancer Awareness Month (CCAM) in the United States, a time to recognize, advocate for, and honor children that have been affected by cancer and the families that care for them, while highlighting the critical need to support research that can lead to safer and more effective treatments for our most vulnerable patients. CCAM serves as a reminder that we must create change to last a lifetime.


In the face of a pediatric brain tumor diagnosis, families rely on love, hope, and the promise that research is advancing toward a cure. Our #CCAM webpage shares the experiences of those who have faced this reality and how they are helping create change to last a lifetime. Read some of these inspiring stories and consider sharing your own.


We all can do something to create change on behalf of our most vulnerable patients – children. During #CCAM everyone has the opportunity get involved and take action. From sharing messages on social media to emailing your member of Congress, collectively, our impact is amplified.


Grab the crayons, glitter, and paint, and let your creativity shine! These activities and projects are easy, creative, and worthwhile for all ages. Together we can raise awareness, the roof, and funds to create change that will last a lifetime.

Ways to Support


Register for a regional event today, and experience the power of communities coming together to conquer and cure brain tumors – once and for all.


Put the fun in fundraising from the comfort of your own home.


Join a loyal group of donors who give monthly in support of our mission.