Skip to content
National Brain Tumor Society | Brain Tumor Investment Fund

We are the largest patient advocacy program in the U.S. committed to curing brain tumors.

2024 Policy Agenda Become an Advocate

Powered by thousands of volunteer advocates, we ensure the brain tumor community’s needs are reflected in national medical research and health care policy decision making.

Policy Agenda

Through our policy agenda – highlighted by our signature legislative initiative, the BRAIN Act – we are advancing brain tumor research, facilitating the development of treatments, and fighting for a better quality of life for patients.

Become an Advocate

Your voice matters. You can help amplify the impact of the NBTS mission and urge policymakers to address the critical issues affecting the brain tumor community by becoming an advocate today.

Become a Research Advocate

Brain and spine tumor research advocates are patients, survivors, or care partners who bring their lived experience and expertise to provide valuable, patient-centered perspectives into scientific research. As research partners, they represent the collective experiences of the community, highlighting medical, logistical, emotional, and financial concerns. Their contributions help influence research design and information sharing, with the goal of improving awareness of research findings and supporting informed decision-making within the community.

323 Participants

attended Head to the Hill 2024, NBTS’s signature advocacy event

8,300+ Messages

were sent to Congress from brain tumor advocates in 2023

258 Advocates

from 36 states took part in 160+ meetings with legislators in fall 2023

$3.25 Billion

in appropriations for programs that support brain tumor research over the past decade thanks to advocacy efforts

Action Alerts

Tools & Trainings

Share Your Story

Head to the Hill

Head to the Hill is NBTS’s signature advocacy event. This annual in-person event gives advocates the chance to meet with their congressional representatives in person in Washington, D.C. during Brain Tumor Awareness Month.

Stay Informed & Connected