Your Voice

Advocate for policy

Fighting for more resources and new public policies to improve quality of life for all those affected

Ensuring better patient access to essential health care is critical to the needs of our community. Working alongside regulators and policymakers, we believe education is key to improving the lives of all those affected by brain tumors, and essential for change.

headtothehill2015

Head to the Hill 2019

Head to the Hill is the National Brain Tumor Society’s annual advocacy event in which volunteer advocates bring their voices to Washington, DC to speak for the brain tumor community.

tools

Advocacy tools

Become more informed about key public policy issues and learn how to educate your elected officials.

From the Blog

  • September 16, 2019

    Can Newly Approved “Tissue Agnostic” Drugs Benefit Pediatric High-grade Glioma Patients?

    Recently, the U.S. Food and Drug Administration (FDA) granted accelerated approval* to the drug Rozlytrek (entrectinib, Genentech/Roche**) as a treatment for patients, 12 years or older, whose tumors have a specific

    Read More

  • September 5, 2019

    Guest Blog: “I would have given anything to trade places with him”

    On a family vacation in 2011, Mac tried to catch a seagull. Using his boogie board to shield his movements, he inched his way across the sand, closing on his target. With the determination and strong-will that defined him, Ma

    Read More

  • August 25, 2019

    Mavericks & Lions Wanted: Remembering Senators John McCain & Ted Kennedy and America’s Stake in the Fight Against Glioblastoma

    What we can learn from Senators John McCain and Ted Kennedy on the shared anniversary of their respective passings, both from glioblastoma

    The post Read More

More from the blog