Event Details

Your participation in Head to the Hill will help policymakers better understand the critical and urgent needs of this community and the policies that are vital to ensuring availability of treatments, increased scientific research, and the discovery of a cure.

During the Head to the Hill virtual event, you will:

  • Receive training via an online platform about key public policy issues facing the brain tumor community
  • Meet virtually with your congressional offices to raise awareness of the issues, needs, and priorities of the brain tumor community
  • Prepare for your meetings with your fellow state brain tumor advocates through virtual meetings
  • Make a difference in the lives of the hundreds of thousands of Americans living with a brain tumor and those impacted by this disease

Event Details

March & April Head to the Hill trainings available
Friday, April 2nd Head to the Hill Registration Closes
Friday, April 23rd All online trainings must be completed for virtual meetings to be scheduled
Sunday, May 2 National Brain Tumor Walk and Race for Hope DC
Monday, May 3 LIVE • Virtual Meeting Training & Practice Sessions in State Groups
Tuesday, May 4 LIVE • Head to the Hill Virtual Congressional Meetings & Wrap-Up

Registration

  • Registration is open to all patients, survivors, caregivers, family, friends, researchers, and clinicians
  • Anyone participating in Congressional meetings must complete all the required training
  • Each participant must have their own unique email address and individual registration
  • Registration closes on Friday, April 2, 2021

Space is limited for Congressional meetings, so register today!

Head to the Hill Trainings

  • Registered advocates will receive an email with login information from our online Litmos training program
  • All participants must complete online trainings as well as one live training to participate in Congressional meetings
  • Each training will be approximately five to fifteen minutes long and can be viewed at your convenience
  • The training program shorts in Litmos will include, but may not be limited to:
    • Advocacy 101
    • Social media tips
    • How to share your story with Congress
    • Advocating for medical research funding
    • Young advocate activities

Congressional Meetings

We will make every effort to secure appointments for you to meet with your two U.S. Senators, as well as your U.S. Representative. If a Senator or Representative is not available, the meeting will be scheduled with a member of their staff. Please note that staff meetings are just as important as meetings with the actual Senator or Representative! Staff members are key advisors to the lawmaker and often are deciding factors in what gets passed on to your member of Congress. These staff members meet regularly with advocates, so this is where your story can make the difference between just another meeting, and a meeting that results in action and support from your member of Congress.

  • Virtual meetings will be scheduled for May 4, 2021 using a virtual video platform
  • National Brain Tumor Society will arrange all of the meetings
  • Please do not set up your own appointments! If you have special contacts with members of Congress or their staff, please contact us at advocacy@braintumor.org
  • You will be grouped with other advocates from your city, state, or region
  • If you are the only advocate from your state, we will pair you with NBTS staff or experienced volunteers
  • Advocates are usually scheduled for 3 or more meetings with each about 20-30 minutes in duration
  • You will have time to meet with your fellow advocates to prepare for your meetings on Monday, May 3rd

Please email advocacy@braintumor.org with any questions.

“Head to the Hill is such an empowering event. It shows me that I am not alone in my journey and that together we ARE making a difference.”

Jim Graul, Head to the Hill 2020 Participant