Event Details


May 5 - 7, 2019 | Washington, DC

Your participation in Head to the Hill will help policymakers better understand the critical and urgent needs of this community and the policies that are vital to ensuring availability of treatments, increased scientific research, and the discovery of a cure.

During this two-day event, you will:

  • Learn about key public policy issues facing the brain tumor community
  • Speak with congressional leaders to raise awareness of the issues, needs, and priorities of the brain tumor community
  • Meet other brain tumor advocates from across the United States
  • Make a difference in the lives of the hundreds of thousands of Americans living with a brain tumor

“Head to the Hill is always the most empowering two days of the year for me. It’s my opportunity to speak up for the brain tumor community and tell our elected officials what I want from them. It’s also always energizing to reunite with my brain tumor family, many of whom I only see once a year at Head to the Hill!”
Beth E. Finn, Pennsylvania Advocate

May 5 – 7, 2019

Sunday, May 5 Advocate Welcome Reception,
including Ependymoma Awareness Day
& Butterfly Release
4 – 6 PM
Monday, May 6 Advocacy Training
Hilton Crystal City
Arlington, VA
8 AM – 4 PM
Tuesday, May 7 Congressional Visits
Capitol Hill
Washington, DC
8 AM – 6 PM

If you are interested in joining other members of the brain tumor community in DC prior to the start of Head to the Hill, you can also participate in Race for Hope – DC, which takes place on Sunday, May 5. Head to the Hill participants have formed a team, and welcome you to join them! Click here to find out more information on Race for Hope – DC and the Head to the Hill team.