Brain Tumor Recurrence

recurrent brain tumor questions

Treatments for recurrent brain tumor may be exactly the same as your original or primary treatment path, or they may be quite different depending on the current location and rate of growth for your recurrent tumor.

This can raise a number of questions. Refer to the list below for important questions to discuss with your medical team after a recurrence.

Questions to Ask at Recurrence

  • How will the treatment for my recurrence be different from the treatment for the original tumor?
  • Who is responsible for my follow-up care?
  • What side effects should I expect from treatment?
  • When should I call you for immediate help?
  • What can I do to manage my side-effects?
  • Will I need rehabilitative services? If so, which ones and for how long?
  • What if I don’t meet my rehabilitative goals before my benefits run out?
  • Can you tell me about any financial support services, from either the hospital, company that produces my treatment, or local charities, that my family and I can use to help with the cost of my treatment and other hardships we may be facing related to my brain tumor?
  • Will I need long-term care services?
  • Do you have any special rates for people paying out-of-pocket?
  • Should I be planning financially for long-term medical care such as a nursing home or hospice?
  • Who can help me understand my state’s Medicaid rules for long term care and my eligibility?

TUMOR TIP

Questions for my Insurance Provider 

  • Are rehabilitative services covered by my insurance? If so, what is covered?
  • What if I don’t meet my rehabilitative goals before my benefits run out?
  • Are private duty care and long-term care covered under my health insurance policy? If not, can I purchase this additional coverage?

Download our Questions to Ask Your Doctor to bring to your appointment.