We are the largest patient advocacy program in the U.S. committed to curing brain tumors.

Through our policy agenda – highlighted by our signature legislative initiative, the BRAIN Act – we are advancing brain tumor research, facilitating the development of treatments, and fighting for a better quality of life for patients.

• The BRAIN Act
• 2025 Policy Agenda

Brain and spine tumor research advocates are patients, survivors, or care partners who bring their lived experience and expertise to provide valuable, patient-centered perspectives into scientific research. As research partners, they represent the collective experiences of the community, highlighting medical, logistical, emotional, and financial concerns. Their contributions help influence research design and information sharing, with the goal of improving awareness of research findings and supporting informed decision-making within the community.

• Learn more about Research Advocacy

Head to the Hill is NBTS’s signature advocacy event. This annual in-person event gives advocates the chance to meet with their congressional representatives in person in Washington, D.C. during Brain Tumor Awareness Month.