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READ MOREThe information, services, products, messages, and other materials contained on this website are provided for educational and informational purposes only and are not a substitute for medical advice and treatment. While we believe the information presented on this website to be accurate at the time of writing, we do not guarantee that its contents are correct, complete, or applicable to any particular individual situation. We strongly encourage individuals to seek out appropriate medical advice and treatment from their physicians.
The information, services, products, messages and other materials on this website are provided with the understanding that the National Brain Tumor Society (“NBTS”) is not engaged in rendering medical advice or recommendations. Sponsorship of this website does not imply NBTS’s endorsement or recommendation of any particular form or forms of therapy, treatment, regimen, or behavior.
Websites listed here are not under the control of NBTS. Accordingly, NBTS can make no representation concerning the content of these websites to you, nor can the fact that NBTS has given you this link serve as an endorsement by NBTS. NBTS is providing this link only as a convenience to you; this is to inform you that NBTS has not verified any information or tested any software found on these websites and therefore cannot make any representations regarding the quality, safety, or suitability of any information/software found there.
When you use our Website as a “Service” to register and create a profile, you are a registered “User.” When you use our Service to post content you are an “Author.” When you use our Service to view general content or visit another person’s NBTS Website, you are a “Visitor.” The term “User(s)” may be used to refer to an Author, a Visitor, or both.
We are continually improving and adding to the features and functionality of our Service and the services we offer. As a result of these changes (or changes in the law), we may need to update or revise these Terms of Use. Accordingly, we reserve the right to update or modify these Terms of Use at any time, without prior notice, by posting the revised version of these Terms of Use behind the link marked “Terms” at the bottom of each page of our Service. Your continued use of our Service after we have posted the revised Terms of Use constitutes your agreement to be bound by the revised Terms of Use.
For your convenience, whenever these Terms of Use are changed, we will update the “effective date” on the page. Be sure you check the effective date to see if these Terms of Use has been revised since your last visit.
You may access the current version of these Terms of Use at any time by clicking the link marked “Terms” at the bottom of each page of our Service.
What are Submissions? In these Terms of Use, we refer to the text, photographs, images, illustrations, graphics, sound recordings, video and audio–video clips, links, and other materials Authors and Visitors post on a NBTS Website as “Submission(s).”
Restrictions on Submissions. You may not post any Submission on a NBTS Website that:
How to Report Abuse. Please contact us immediately of any Submission that you believe violates these Terms of Use.
License to Use Your Submissions. By posting Submissions on a NBTS Website, you are granting NBTS a non–exclusive, worldwide, full paid–up and royalty–free, fully assignable, transferable and sub licensable license to use, copy, perform and display publicly (including, in the case of sound recordings, to perform publicly in digital audio transmission), distribute, and prepare derivative works based on your Submissions, in whole or in part, throughout the universe in any form, format, or medium now or hereafter known, in accordance with these Terms of Use.
Termination of License to Use Your Submissions. The license granted in preceding section of these Terms of Use shall automatically terminate with respect to our future uses of Submissions within a commercially reasonable time after you remove (or ask us to remove) such Submissions from our Service. However, to the extent we have already exercised any of the foregoing license rights with respect to the removed Submissions, such licenses shall not be deemed revoked as to the prior uses. In addition, such licenses shall not be deemed revoked as to any Submissions that have been transmitted to other Websites, persons, or media. Termination of this license does not terminate the license you have granted in any Ideas contained in your Submissions. In addition, termination of this license does not terminate our right to preserve, access, and disclose your Submissions if required to do so by law or in a good faith belief that such preservation or disclosure is reasonably necessary to: (a) comply with legal process; (b) enforce these Terms of Use; (c) respond to claims that any content violates the rights of third-parties; or (d) protect the rights, property, or personal safety of NBTS, its users and/or the public.
Your Warranties With Respect to Your Submissions. By posting a Submission on a NBTS Website, you represent and warrant that the posting of your Submission on the NBTS Website you select does not violate these Terms of Use or applicable laws.
Right, But Not Obligation, to Monitor Submissions. NBTS does not and shall not have any obligation to review Submissions, and therefore we do not guarantee the accuracy, integrity, or quality of Submissions and we cannot assure you that harmful, inaccurate, deceptive, offensive, threatening, defamatory, unlawful, or otherwise objectionable Submissions will not appear on our Service. We do, however, reserve the right to review any or all Submissions at our sole discretion. In addition, we reserve the right to alter, edit, or remove any Submissions, in whole or in part, at our sole discretion.
Your Use of Submissions Posted by Others. You may not use, copy, reproduce, distribute, publish, display, perform, create derivative works of, transmit, sell, or in any way exploit any of the Submissions posted by others except as expressly set forth in these Terms of Use.
Submissions Do Not Reflect the Views of NBTS. The Submissions posted on our Service by any person, regardless of that person’s affiliation or non-affiliation with NBTS, reflect only the opinions of the person posting the Submission.
You, and you alone, are legally responsible for your Submissions. If any part of your Submission is not your original work, it is your responsibility to obtain permission from the copyright owner before you post your Submission.
Failure to comply with these Terms of Use may expose you to liability to NBTS and liability to individuals or legal entities whose copyrights or other rights have been violated.
UNDER NO CIRCUMSTANCES SHALL NBTS OR ITS SPONSORS BE LIABLE IN ANY WAY FOR ANY SUBMISSIONS POSTED ON OR MADE AVAILABLE THROUGH A NBTS WEBSITE BY YOU OR ANY OTHER USER. Although we include strict provisions regarding Submissions in these Terms of Use, we do not control, have no obligation to monitor, and are not responsible for what Users post on or through our Service and are not responsible for any offensive, inappropriate, obscene, unlawful, infringing, or otherwise objectionable or illegal Submissions you may encounter on our Service or in connection with your use of our Service. You understand that by maintaining or visiting a NBTS Website, you or your Visitors may be exposed to Content that is offensive, indecent, or objectionable.
You may not use our Service
Many Authors ask us if they own the copyright for whatever they post on their NBTS Website. The answer is “yes.” If a Submission (whether it be a blog entry, a poem, a photograph, or any other form of content) is the original work of the individual posting the Submission, then the individual posting the Submission owns the copyright for that work. This is true whether the individual is an Author or a Visitor. NBTS does not claim any copyrights in original works created and posted by its Users. Please be aware, however, that by posting a Submission on a NBTS Website you are granting NBTS a license to use your Submission in accordance with these Terms of Use.
Ownership of This Site. This Site, including all of the software and code comprising or used to operate our Service, any personalized NBTS Website, and all of the text, photographs, images, illustrations, graphics, sound recordings, video and audio–video clips, and other materials available on our Service (collectively, “Content”), except for your own Submissions, is owned by NBTS or by third parties who have licensed their rights to NBTS. No right, title, or interest in our Service, any NBTS Website, or any Content is transferred to you under these Terms of Use.
Copyrights. As between you and NBTS, NBTS and its licensors own and reserve the copyrights in our Service, including all of its Content, except that NBTS does not claim ownership of the copyrights in your Submissions.
Copyright License. We hereby grant you a limited license to access and use our Service, including any NBTS Website to which you have properly gained access, and to download and print copies of any Content to which you have properly gained access, but only for your own personal, non–commercial use, and only if you do not remove, modify, or obscure any copyright, trademark, or other proprietary notices from such Content. The foregoing license is subject to these Terms of Use and does not include use of any data mining, robots, or similar data gathering or extraction methods. This license is revocable at any time without notice and with or without cause. You agree not to use, display, reproduce, retransmit, modify, distribute, disseminate, sell, publish, broadcast, circulate, display, or in any way exploit any Content, in whole or in part, by any means, except as expressly set forth in these Terms of Use, unless you first obtain our written permission. This license and these restrictions do not apply to your own Submission.
Trademarks. National Brain Tumor Society, the National Brain Tumor Society logo, Head to the Hill, Defeat GBM, Get Your Head in the Game, Tulips Against Tumors, and other marks are registered service marks of the National Brain Tumor Society. All tradenames, trademarks, taglines, and service marks displayed on an NBTS Website are the registered or unregistered trademarks of NBTS, or its licensors, or other third parties (collectively, the “Trademarks”) and are protected by U.S. and international trademark laws and treaties. You may not use such Trademarks without the prior express written permission of NBTS or the trademark owner.
In General. If you would like us to remove any Submissions from our Service for any reason, please contact us. While we do not have any obligation to remove Submissions merely because of a removal request, NBTS will review all such requests and will remove Submissions that we determine should be removed, at our sole discretion and in accordance with these Terms of Use (including our Privacy Policy) and applicable law. If you are requesting removal of Submissions due to a violation of your copyrights, please follow the procedure described in the “Violation of Copyrights/Copyright Agent” paragraph below.
Violation of Copyrights. The Digital Millennium Copyright Act of 1998 (the “DMCA”) provides recourse for copyright owners who believe that material appearing on the Internet infringes their rights under U.S. copyright law. If you are the copyright owner (or are authorized to act on behalf of the copyright owner), please notify the Executive Director immediately of any copyright infringement. As soon as we receive your notice of claimed infringement, in the form described below, we will promptly remove or disable access to materials that are claimed to be infringing (or the subject of infringing activity). Your notice must be in writing and must include the following:
National Brain Tumor Society
55 Chapel Street, Suite 006
Newton, MA 02458
Phone: 617-393-2811
Any notification by a copyright owner or a person authorized to act on its behalf that fails to comply with requirements of the DMCA shall not be considered sufficient notice and shall not be deemed to confer upon NBTS actual knowledge of facts or circumstances from which infringing material or acts are evident.
DO NOT SUBMIT CONFIDENTIAL OR PROPRIETARY IDEAS TO US. DO NOT SUBMIT IDEAS TO US IF YOU EXPECT ANY FORM OF COMPENSATION. ANY IDEAS YOU CHOOSE TO SUBMIT TO US MAY BE USED BY US IN ANY MANNER WHATSOEVER WITHOUT COMPENSATING YOU IN ANY WAY AND WITHOUT OBLIGATION OF CONFIDENTIALITY. PLEASE READ THIS SECTION CAREFULLY BEFORE YOU SUBMIT ANY IDEAS TO US.
As used in these Terms of Use, the term “Ideas” refers to any feedback, suggestions, inventions, conceptions, or ideas you submit to NBTS. The term “Ideas” does not include any Submission you post on a NBTS Website.
NBTS does not wish to receive confidential or proprietary Ideas. All Ideas submitted to NBTS through our Service shall be considered NON–CONFIDENTIAL and NON–PROPRIETARY.
By submitting Ideas to NBTS through our Service, you are granting to NBTS and its designees a perpetual, irrevocable, worldwide, non–exclusive, fully–paid up and royalty free, fully assignable, transferable, and sublicensable license to use, exploit, modify, improve, copy, distribute, display, or perform publicly (including, in the case of sound recordings, to perform publicly in digital audio transmission), prepare derivative works of the Ideas you submit (and all rights therein), without restrictions of any kind, without any payment or other consideration of any kind, without notification to you or any third party, and without attribution, throughout the universe and in any form, format, or medium now or hereafter known, and to authorize others to do the same. This license includes the right to reduce to practice, make, have made, use, import, export, sell, and offer to sell products and services incorporating, embodying, or using the Ideas (including, to the extent reasonably necessary, any ideas underlying the Ideas) and to authorize others to do the same.
NBTS reserves the right at any time and from time to time to modify or discontinue, temporarily or permanently, our Service (or any part thereof) with or without notice. NBTS shall not be liable to you or to any third party for any modification, suspension, or discontinuance of our Service.
An NBTS Website, may provide links to other websites operated by third parties. Because we have no control over third–party websites, we are not responsible for the availability of those websites and do not endorse and are not responsible or liable for any content, advertising, services, products, or other materials on or available from such websites. NBTS shall not be responsible or liable, directly or indirectly, for any damage or loss caused or alleged to be caused by or in connection with the use of or reliance on any content, advertising, services, products, or other materials on or available from such websites. These Terms of Use do not apply to your use of third-party websites; your use of such websites is subject to the terms and policies of the owner of such websites.
NBTS MAKES NO REPRESENTATIONS OR WARRANTIES WHATSOEVER WITH RESPECT TO THIS SERVICE, ANY CONTENT (INCLUDING USER SUBMISSIONS) ON THIS SERVICE, OR ANY PRODUCT OR SERVICE PROMOTED THROUGH THIS SERVICE. THIS SERVICE AND ALL OF ITS CONTENT ARE PROVIDED “AS IS” AND ON AN “AS AVAILABLE” BASIS. TO THE FULLEST EXTENT PERMITTED BY APPLICABLE LAW, NBTS DISCLAIMS ALL WARRANTIES, EXPRESS OR IMPLIED, ARISING BY STATUTE, CUSTOM, OR COURSE OF DEALING, COURSE OF PERFORMANCE, OR IN ANY OTHER WAY, INCLUDING WITHOUT LIMITATION IMPLIED WARRANTIES OF TITLE, NON–INFRINGEMENT, MERCHANTABILITY, AND FITNESS FOR A PARTICULAR PURPOSE. WITHOUT LIMITING THE GENERALITY OF THE FOREGOING, NBTS DOES NOT MAKE ANY REPRESENTATIONS OR WARRANTIES AS TO THE ACCURACY, CORRECTNESS, RELIABILITY, COMPLETENESS, OR USEFULNESS OF ANY CONTENT APPEARING ON THIS SERVICE. NBTS DOES NOT ENDORSE ANY OPINION, ADVICE, COMMENT, OR STATEMENT MADE ON THIS SERVICE BY USERS, AND USER SUBMISSIONS DO NOT IN ANY WAY REFLECT THE OPINION, ADVICE, OR STATEMENT OF NBTS.
NOTHING IN THESE TERMS AND CONDITIONS SHALL AFFECT ANY STATUTORY RIGHTS TO WHICH YOU MAY BE ENTITLED AS A CONSUMER TO THE EXTENT YOUR ABILITY TO ALTER OR WAIVE SUCH RIGHTS BY CONTRACT IS LIMITED BY APPLICABLE LAW.
UNDER NO CIRCUMSTANCES, SHALL NBTS, OR ITS SPONSORS, LICENSORS, OR SERVICE PROVIDERS, OR ANY OF ITS OR THEIR RESPECTIVE SHAREHOLDERS, DIRECTORS, OFFICERS, EMPLOYEES, OR AGENTS (COLLECTIVELY, THE “RELEASED PARTIES”) BE LIABLE TO YOU OR ANY THIRD PARTY CLAIMING THROUGH YOU FOR ANY LOSSES OR DAMAGES ARISING OUT OF OR IN CONNECTION WITH THIS SERVICE, ITS CONTENT (INCLUDING USER SUBMISSIONS), ANY PRODUCTS OR SERVICES MADE AVAILABLE THROUGH THIS SERVICE, OR YOUR USE OF OR INABILITY TO USE THIS SERVICE, INCLUDING ANY LOSS OR DAMAGE DUE TO VIRUSES THAT MAY AFFECT YOUR COMPUTER EQUIPMENT, SOFTWARE, DATA, OR OTHER PROPERTY ON ACCOUNT OF YOUR USE OF THIS SERVICE OR YOUR DOWNLOADING OF ANY MATERIAL FROM THIS SERVICE.
THIS IS A COMPREHENSIVE LIMITATION OF LIABILITY THAT APPLIES TO ALL LOSSES AND DAMAGES OF ANY KIND (WHETHER DIRECT, INDIRECT, GENERAL, SPECIAL, CONSEQUENTIAL, INCIDENTAL, EXEMPLARY, OR OTHERWISE, INCLUDING, WITHOUT LIMITATION, LOSS OF DATA, INCOME, OR PROFITS), WHETHER THE CLAIM IS BASED ON CONTRACT, TORT (INCLUDING NEGLIGENCE), STRICT LIABILITY, OR ANY OTHER LEGAL THEORY, EVEN IF AN AUTHORIZED REPRESENTATIVE OF NBTS OR ANOTHER RELEASED PARTY HAS BEEN ADVISED OF OR SHOULD HAVE KNOWN OF THE POSSIBILITY OF SUCH DAMAGES, AND WITHOUT REGARD TO THE SUCCESS OR EFFECTIVENESS OF OTHER REMEDIES.
IF ANY PART OF THIS LIMITATION OF LIABILITY IS FOUND TO BE INVALID, ILLEGAL, OR UNENFORCEABLE FOR ANY REASON, THEN THE AGGREGATE LIABILITY OF NBTS, ITS SPONSORS, LICENSORS, AND SERVICE PROVIDERS, AND ITS AND THEIR RESPECTIVE SHAREHOLDERS, DIRECTORS, OFFICERS, EMPLOYEES, AND AGENTS, UNDER SUCH CIRCUMSTANCES TO YOU OR ANY PERSON OR ENTITY CLAIMING THROUGH YOU FOR LIABILITIES THAT OTHERWISE WOULD HAVE BEEN LIMITED SHALL NOT EXCEED ONE HUNDRED DOLLARS ($100.00).
SOME JURISDICTIONS DO NOT ALLOW THE EXCLUSION OF LIABILITY FOR CERTAIN TYPES OF DAMAGES. ACCORDINGLY, SOME OF THE THESE LIMITATIONS OF LIABILITY MAY NOT APPLY TO YOU.
NOTHING IN THESE TERMS AND CONDITIONS SHALL LIMIT OR EXCLUDE LIABILITY FOR LOSSES OR DAMAGES WHICH MAY NOT BE LAWFULLY EXCLUDED OR LIMITED BY APPLICABLE LAW.
The following special terms apply when you use our Service to create or maintain a NBTS Website:
Age Restriction. You must be at least 18 years old to create and maintain a NBTS Website. If you are under 18, your parent or guardian may create and maintain a NBTS Website for you. Your parent or guardian must register and select the privacy level for the NBTS Website.
User Registration Information. As the Author of a NBTS Website, you agree to (a) provide true, accurate, current and complete information about yourself as prompted by the setup account form on the “Setup Account” Page, and (b) to maintain and promptly update the Registered User Account Information to keep it true, accurate, current and complete.
Registered User Log-In Information. As the Author of a NBTS Website, you will update your site using your log-in information (username and password). When you log in using your username and password, you will be able to update your NBTS Website and set the level of privacy for your NBTS Website. You may change this information at any time.
Registered User Log-In Information Security. You may not use the username and password of any other person to access our Service. You are responsible for maintaining the confidentiality of your username and password and may not let any other person use it to access our Service. You shall be solely responsible for the activities of anyone accessing our Service using a username and password assigned to you, even if the activities were not, in fact, authorized by you. You must notify NBTS immediately of any unauthorized use of your username and password. In addition, if you believe or suspect your username and password has been compromised, you must promptly change your username and password using the functionality provided on our Service. If you need help changing your username and password, contact us.
Privacy Settings. Our goal is to balance our Registered Users’ need to find each other, communicate information and support against our Users’ desire for a measure of privacy. Because our Authors have different preferences and needs, we let each Author choose from a menu of privacy settings. The menus vary, depending on when the NBTS Website was first created.
Term and Cost of Service. Unless one of the other provisions of these Terms of Service applies:
Termination. As the registered user of a NBTS Website, you agree that NBTS may, under certain circumstances and without prior notice, immediately delete your NBTS Website. Cause for such termination will include, but not be limited to, (a) breaches or violations of these Terms of Service or other incorporated agreements or guidelines; (b) requests by law enforcement or other government agencies; (c) a request by you; (d) discontinuance or material modification to the Website (or any part thereof); (e) unexpected technical or security issues or problems; and (f) extended periods (more than six months) of inactivity. Further, you agree that all terminations for cause will be made at NBTS’s sole discretion and that NBTS will not be liable to you or any third–party for deletion of your NBTS Site.
Preserve Your NBTS Website. We recommend that, from time to time, you print your blog and other pages of your NBTS Website so that you will have a back–up copy in case any part of your NBTS Website is accidentally destroyed.
As a charitable 501(c)(3) organization, NBTS invites Users to provide charitable donations to NBTS. Donations ensure families can use NBTS free of charge. NBTS will inform Users of the opportunity to donate on an NBTS Website, within email communications and within direct mail letters. Users can opt–out of email and direct mail letter communications.
From time to time, Users will post information on an individual NBTS Website to let other Users know how they can contribute money to help someone in need. Our concern is that some of these requests for help may be fraudulent and our Users may be deceived. We can not review every posting on every NBTS Website and have no way of policing these requests or determining their authenticity. Accordingly, we urge you not to respond to any fundraising requests that may be posted on an individual NBTS Website unless you are absolutely certain, from first hand knowledge, that the request is legitimate and that your donation will be used in the manner you intend. NBTS WILL NOT BE RESPONSIBLE OR LIABLE, DIRECTLY OR INDIRECTLY, FOR ANY LOSSES OR DAMAGES CAUSED OR ALLEGED TO BE CAUSE IN CONNECTION WITH YOUR RESPONSE TO ANY SOLICITATION CONTAINED ON ANY INDIVIIDUAL NBTS WEBSITE. We also want to remind you that contributions made in response to solicitations posted on individual NBTS Website are not contributions to NBTS and may not be tax deductible.
Every member of the community, including the Author, family, and all Visitors, is responsible for maintaining the confidentiality of the Website address (“URL”) of a NBTS Website in accordance with the Author wishes. NBTS has no way of knowing and will not be responsible or liable if the individual accessing a NBTS Website obtained the Website address through improper means.
In addition, individuals using our Service must understand that the Internet is inherently insecure and no website operator can guarantee that a website is secure.
NBTS does not warrant that our Service or any NBTS Website is secure or “hackerproof.” You use our Service solely at your own risk.
NBTS communities may include friends and family of all ages. Special care must be taken to protect children under the age of 13. For this reason, NBTS does not permit children under age 18 to create or maintain their own NBTS Website — “a parent or guardian must register as the Author and take responsibility for the NBTS Website. We also do not permit children under the age of 13 to use the Website. Instead, their parent or guardian must register, so that the parent or guardian can supervise their child’s activities as necessary. If you believe that a child has posted Submissions on our Service without the consent and supervision of a parent or guardian,” please contact us so that we can take appropriate action.
These Terms of Use and the relationship between you and NBTS shall be governed by and construed in accordance with the federal laws of the United States of America and the internal laws of the State of Massachusetts, U.S.A., excluding conflict of laws provisions that would indicate the application of the laws of any other jurisdiction. ANY LEGAL ACTION OR PROCEEDING ARRIVING OUT OF OR RELATING TO YOUR ACCESS TO, OR USE OF, THIS SERVICE OR THESE TERMS OF USE SHALL BE INSTITUTED ONLY IN A STATE OR FEDERAL COURT LOCATED IN MIDDLESEX COUNTY, MASSACHUSETTS, U.S.A. YOU AND NBTS IRREVOCABLE AGREE TO SUBMIT TO THE JURISDICTION OF SUCH COURTS. You expressly waive any claim of improper venue and any claim that such courts are an inconvenient forum. If the courts of the country in which you reside should determine that the provisions of this paragraph are not enforceable, then you agree to submit to binding arbitration.
You agree that regardless of any statute or law to the contrary, any claim or cause of action arising out of or related to use of our Service or these Terms of Use must be filed within one (1) year after such claim or cause of action arose or be forever barred.
As used in these Terms of Use, the term “including” means “including, but not limited to.” Section headings are for reference purposes only and in no way define, limit, construe, or describe the scope or extent of such section.
Our failure at any time to require performance of any provision of these Terms of Use or to exercise any right provided for herein shall not be deemed a waiver of such provision or such right. All waivers must be in writing and signed in ink by the party to be bound. Unless the written waiver contains an express statement to the contrary, no waiver of any breach of any provision of these Terms of Use or of any right provided for herein shall be construed as a waiver of any continuing or succeeding breach of such provision, a waiver of the provision itself, or a waiver of any right under these Terms of Use.
If any provision of these Terms of Use is held to be invalid or unenforceable by a court of competent jurisdiction, such invalidity or unenforceability shall not affect the validity or enforceability of the remaining provisions, and the court shall substitute for such provision the valid and enforceable provision that most closely approximates the intent and economic effect of such provision. The remaining provisions of these Terms of Use shall remain in full force and effect.
These Terms of Use set forth the entire understanding and agreement between us and supersede all prior understandings and agreements between you and NBTS with respect to the subject matter hereof.
These Terms of Use may be amended only as set forth above in these Terms of Use.
If you have any questions regarding this these Terms of Use, please contact us.