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National Brain Tumor Society | Brain Tumor Investment Fund

Advocate From Your State:
A Virtual Head to the Hill

Event details Logistics & FAQs

Building on the momentum of May’s in-person Head to the Hill, Advocate From Your State™ meetings provide advocates with the opportunity to hold effective, meaningful conversations with members of Congress and their staff. Save Tuesday, September 9, 2025, in your calendar for congressional meetings this year! 

Each fall, the National Brain Tumor Society hosts a virtual advocacy event during which volunteer advocates meet virtually with members of Congress to share their stories and persuade representatives to make important decisions that impact our community. Advocate From Your State is a great opportunity for advocates to reconnect with members of Congress after meeting with them in person at Head to the Hill or to introduce themselves and advocate for a piece of legislation that will positively impact patients with brain tumors and their families now and in the future.

NBTS will work with elected officials to schedule advocate meetings between 8 a.m. – 5 p.m. in your time zone on Tuesday, September 9, 2025. Whether you are a seasoned advocate or are interested in participating for the first time, we will equip all volunteers with the training and materials necessary for successful meetings.

During the 2024 Advocate From Your State event, 195 volunteers held 200 meetings with their members of Congress. These meetings focused on educating Congress about the experiences of people affected by brain tumors — as a patient or survivor, family member, care partner, friend, researcher, or medical provider — while securing support for the Bolstering Research And Innovation Now (BRAIN) Act. This bill was re-introduced to the 119th Congress on April 8, 2025, and has bipartisan, bicameral support. We need your help to move it forward!

LEARN MORE ABOUT THE BRAIN ACT

Questions? You can contact our Government Relations & Advocacy Team at advocacy@braintumor.org.

Event Details

Thursday, June 19, 2025Registration Opens
Monday, August 11, 2025Registration Closes
Thursday, August 28, 2025Live Webinar Training (3 – 4:30 p.m. ET)
Tuesday, September 9, 2025Virtual Advocate From Your State Meetings (8 a.m. – 5 p.m. your time)
Please note: it is not possible to coordinate with each individual advocate’s schedule. Please set aside the entire day for your meetings to ensure your availability.

Logistics & FAQs

We will host a virtual training webinar on Thursday, August 28, from 3 – 4:30 p.m. ET.

Please try to attend so your questions can be answered live and so you may practice in your state groups. If you are unable to attend, a recording of the webinar will be sent to you shortly after via email.

Schedule: Two weeks before the event, you will receive an emailed link with your schedule from Advocacy Associates, along with instructions on how to navigate the web portal. 

All necessary materials (one-pagers, state fact sheets, etc.) will be available to view in the Advocacy Associates web portal. 

Meetings can change at the last minute on the Hill, so pay close attention to schedule updates from Advocacy Associates. If you are not able to attend, please let us know immediately, as we will be charged for “no-shows.”

Bring a 4 x 6 photo of who you are advocating for to share on camera in the group screenshot at the end of each of your meetings.

For our virtual meetings (Sept. 9), if you have an NBTS T-shirt from previous in-person Head to the Hill events, please wear it.

If you do not have an NBTS shirt, please wear a business casual shirt.

For all questions, please contact: Kacey Troy Ribnik: ktroy@braintumor.org

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