During Brain Tumor Treatment

Brain Tumor Questions

  Download Key Questions for During Brain Tumor Treatment (PDF)


As you move through your treatment path, you may have a million questions for your medical team and treatment providers. That is okay! Ask as many questions as you need to in order to feel comfortable with the treatment techniques that you and your doctor have selected.

During Treatment Key Questions:

Palliative Care & Quality of Life

  • Will quality of life and palliative care be part of my plan during treatment?
  • What can I do to feel better?
  • Will I need long-term care services?

Symptoms & Side Effects

  • How will side effects such as fatigue, hair loss and headache be managed during my treatment?
  • Do I need rehabilitative services? If so, how do I access them, which ones and for how long?
  • What can I do to manage my side effects?
  • How do you recommend I keep track of how I feel, and what do you need to know?
  • What should I be watching for to call for immediate help?

Support

  • How will we address mental health support for myself and my caregiver throughout treatment?
  • Will I have access to social work support?
  • What if I don’t meet my rehabilitative goals before my benefits run out?
  • Can you tell me about any financial support services, from either the hospital, company that produces my treatment, or local charities, that my family and I can use to help with the cost of my treatment and other hardships we may face related to my brain tumor?
  • Will I need to navigate long-term Social Security Disability Insurance (SSDI) and who can help me do that?
  • Do you have any special rates for people paying out-of-pocket?
  • Who can help me understand Medicare and my state’s Medicaid rules for long-term care and my eligibility?
  • Can I drive or will I be able to drive eventually? What do I need to do to be cleared to drive again? Can you recommend any local transportation assistance programs?
  • Should I be planning financially for long-term medical care such as a nursing home or hospice?

TUMOR TIP

Questions for my Insurance Provider

  • Are rehabilitative services covered by my insurance? If so, what is covered?
  • What if I don’t meet my rehabilitative goals before my benefits run out?
  • Are private duty care and long- term care covered under my health insurance policy? If not, can I purchase this additional coverage?