Share Your Tumor Type Experience With NBTS

We invite you to tell us about the unique experiences and challenges that come with your tumor type.

Please complete the form below if you’re willing to share your experience for possible inclusion in future NBTS content.

Name(Required)

First Last

Email:(Required)

By providing your email address and/or mobile phone number, you are signing up to receive emails and/or texts from NBTS. You can opt out of these messages at any time.

Phone(Required)

Where are you from?(Required)

City State

Anything you share in this form may be included in future NBTS content (e.g., social media, NBTS’s blog, etc.) as a quote. Are you comfortable with NBTS sharing your first name and last initial with your quote? If you answer no and continue to complete the form, we will attribute your quote to a pseudonym.(Required)

What do you wish people knew about living with your specific tumor type?

What are some of the unique challenges facing people living with your tumor type?

When you were first diagnosed, what do you wish you had known about your tumor type and its treatment?

Some people may be uncomfortable asking questions about constipation/gas, sex drive/performance, acne, weight gain from steroids, Keppra rage, anxiety, depression, etc. Are there any topics specific to your tumor type that you wish were more widely talked about? Would you feel comfortable sharing your personal experience on a topic, using a pseudonym if you prefer, to help others not feel alone in that experience?

Were there any educational resources you wish you had at the time of diagnosis?

If NBTS could address a specific topic about the brain tumor experience, what would you like to see us cover? (For example, is it addressing mental/emotional/relational topics like fear of recurrence, loss of identity, or parenting with a brain tumor? Or a physical challenge like managing seizures or fatigue? Or do you want to learn more about a topic like health insurance or home care?)

Is there anything else you would like to share about your experience?

Please share your connection to brain tumors.(Required)

Other connection to brain tumors:

Which tumor type best describes your diagnosis or the diagnosis of your family member or friend?(Required)

Other diagnosis (or unknown):

Share Your Tumor Type Experience With NBTS

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Share Your Tumor Type Experience With NBTS

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