Head to the Hill 2018: Brain Tumor Advocates Raising Their Voice The weather report in D.C. threatened rain during this year’s Head to the Hill 2018. And yet, the weather held for over 200 advocates coming from 38 states and Washington, D.C. Many of our advocates joined 457 teams and 350 brain tumor survivors on the May 6, Race for Hope DC. The 21st year of this […] May 14, 2018
Guest Blog: The Powerful Platform Offered by National Brain Tumor Society “It is very unlikely that you will not have a recurrence,” my neuro-oncologist said softly, leaning in to fold his hands together, interlocking his fingers, “but you have many positive prognostic indicators in your favor, including your age, IDH1 mutation status, and general good health.” With this information—vague and uncertain to a newly diagnosed patient, […] November 7, 2017
Thank you for being on our team – BTAM 2017 Brain Tumor Awareness Month (BTAM) in 2017 was all about taking action together. To many in the brain tumor community, awareness isn’t the sole issue, it’s finding ways to connect raising the profile of this disease with getting people take action. At the National Brain Tumor Society, we wanted to provide you with activities and […] June 1, 2017
Recapping Head to the Hill 2017 They came from 38 states. 308 brain tumor patients, caregivers, and supporters made their way to our nation’s capital to advocate for policies that will benefit the brain tumor community as part of Head to the Hill 2017. Despite high-profile and contentious debates happening on Capitol Hill, NBTS and our advocate were determined to ensure Congress […] May 16, 2017
A Brain Tumor Journey, Part III: The Conclusion – Relief, Recovery, and Redemption What follows is the third and concluding chapter of a brain tumor journey, told in her own words, by survivor, Sarah Vannatta.> See Part I> See Part II A few days after my surgery, I was out for a short walk with my ICU nurse, Chris. Chris held my hospital gown closed as I shuffled along. We […] April 20, 2017