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A Daughter’s Story of Advocacy After Loss Jennifer L. fondly remembers the long road trips she took as a child with her mom, Jacqueline. With a car stocked full of CDs and the open road ahead of them, they’d belt out lyrics, make spontaneous pit stops, and have uninterrupted conversations that stretched for miles. “Road trips were our one-on-one time without any […] June 20, 2025

How Georgie Turned a Childhood Brain Tumor Into a Catalyst for Change At just five years old, Georgie D. was diagnosed with a brain tumor the size of a golf ball. Most memories from that time are hazy, but one remains vivid: zipping down hospital hallways on her scooter for a joyful childhood moment in the midst of uncertainty. Before her diagnosis, Georgie endured excruciating headaches so […] May 23, 2025

Mother Advocates for Improved Clinical Trial Access After Daughter’s Brain Tumor Diagnosis Whether hiking through trails perched atop twenty-foot cliffs or touching live sharks and stingrays, middle schooler Ava Q.E. was fearless — always volunteering to go first, thanks to her adventurous personality. It was a shock when Ava started repeatedly losing her vision for 5-10 seconds each time she stood up.  Her eye doctor ordered an […] September 19, 2023

From College Challenges to Clinical Trials: A Story of Resilience Little did Julia V. know that her troubling symptoms as an undergraduate were a precursor to a life-altering brain tumor diagnosis in college and a profound understanding of the patient experience as a health care professional years later. During her junior year at Washington University in St. Louis, Missouri, majoring in microbiology and anthropology, Julia […] August 25, 2023

Neuro-oncologist Advocates for Brain Tumor Community at Head to the Hill After three years of attending Head to the Hill virtually due to the pandemic, neuro-oncologist Dr. Nicholas Blondin is counting down the days to the event’s return in person to Capitol Hill this May 8-9. As a neuro-oncologist and the lead principal investigator of GBM AGILE at Yale Cancer Center and Smilow Cancer Hospital, Dr. […] March 27, 2023