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Lori and Theo Advocate for the Pediatric Brain Tumor Community

Published on November 30, 2025 in Survivor, Advocate

When Theo was just one year old, he was diagnosed with medulloblastoma. Five years later, Theo and his mom, Lori, began attending the National Brain Tumor Society’s signature advocacy event, Head to the Hill.

Thirteen years post-diagnosis, Lori and Theo continue to go to Washington, D.C., to meet with other advocates from across the country and speak with their congressional representatives, sharing their story and pushing for the funding and research needed to find better treatments and, one day, a cure.

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