News

Infographic: What brain tumor caregivers want During July and August 2014, we asked the community to take part in the Jumpstarting Brain Tumor Drug Development Coalition Patient & Caregiver Survey to help inform the ongoing efforts of our Clinical Trial Endpoints Initiative. The response from all of you was astounding. We received more than 1,800 submissions* and learned a great deal more […] May 26, 2015

Precision Medicine, Adaptive Clinical Trials, and Defeat GBM President Barack Obama sent waves through the national news media when he announced during his 2015 State of the Union Address that he would be launching a “precision medicine” initiative. “Obama Proposes U.S. Spending to Research Personalized Cures,” was the headline from Bloomberg. “What is President Obama’s ‘precision medicine’ plan, and how might it help you?” asked […] February 9, 2015

Doing More Together: Celebrating Progress in 2014 & Building Hope for a Successful 2015 The Holiday season for many is a time for traditions; every year revisiting favorite places, taking part in memorable events, and spending time with the people you care about. For a nonprofit patient advocacy organization like the National Brain Tumor Society, it also means reviewing progress made in the previous 12 months, and planning for […] January 2, 2015

Guest Blog: Can this treatment help me live a longer and better life? Why was I asked to sit on a panel with two top officials from the U.S. Food and Drug Administration (FDA), two leading neuro-oncologists, an associate professor of neuropsychiatry, and an executive from the biopharmaceutical company, Genentech? Because, as a five-year brain tumor survivor and volunteer advocate with the National Brain Tumor Society, I want […] November 7, 2014

Advocating for Childhood Cancer Cures National Brain Tumor Society is driven to create change for the more than 4,000 children and their families who will receive the terrible diagnosis of a pediatric brain tumor this year. In addition to our funded initiatives, we also are committed to working with the greater pediatric cancer community to help advance research toward new […] October 10, 2014