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In the Community

11 Ways to Find Community Through the National Brain Tumor Society Patients living with a brain tumor and their care partners often encounter isolation and loneliness throughout their brain tumor experience. In the wake of a diagnosis of a rare disease like a brain tumor, it may seem like no one understands what you’re facing. You can find community with others who truly understand and gain […] March 14, 2024
Event Participant Stories In the Community

AJ Forms Denver Community Ride to Accelerate Breakthroughs As a young professional, AJ Colaizzi turned to cycling to get more active while also enjoying the outdoors. He signed up for a bike ride in Colorado that covers 110 miles in 10,000 feet of elevation. As he began to train, AJ realized that “maybe I should try to fundraise for a cause and put […] February 21, 2023
Glioblastoma Event Participant Advocacy Pediatric Brain Tumor Advocate In the Community

Advocate Pushes for Improved Quality of Life and Increased Research Funding A busy working mom, Jyothi was no stranger to shuttling her two boys around for school and extracurricular activities. Her youngest son, Nitin, began complaining of headaches after playing tennis and also started to experience difficulties blowing to play his clarinet. A pediatrician suggested a CT scan to rule out anything more serious. “It was […] January 31, 2023
Survivor Glioblastoma Brain Tumor Fundraising Stories In the Community

Turning Lemons into Lemonade After a Glioblastoma Diagnosis “Get your ice-cold lemonade!” These words reverberated through the air outside the Yale School of Medicine as Claire and Molly Lindenbach tried to garner sales for their “Lemon-Aid” Stand. The unusual sight attracted the attention of students and professionals working in the area. Only four months earlier, Claire and Molly’s dad, Brett, worked as a […] August 4, 2022
Glioblastoma Event Participant Fundraising Stories In the Community

Guest Blog: My Dad’s Diagnosis Continues to Bring Our Family Together My father, Urbano, was the first in his family to come to the U.S. in the late ’70s from his hometown in Tequila, Mexico. From as far back as I can remember, he has always put family first. My childhood memories are focused around big family events because everything was a cause for celebration. The most […] July 20, 2022

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