SNO-Cap 2018: Recapping The Annual Meeting and Education Day of the Society for Neuro-Oncology The Annual Meeting and Education Day of the Society for Neuro-Oncology (SNO) continues to grow. Each of the last few years, SNO has reported new records for conference registration, attendees, and the number of presentations submitted for consideration. The 23rd annual SNO meeting in New Orleans, LA from Thursday, November 15 through Sunday, November 18 […] December 17, 2018
Guest Blog: Endure4aCure – Brain Surgeon Becomes an “Ironman” to Support Patients On July 22, Evan Winograd, a sixth-year neurosurgery resident who also does brain tumor research, completed the infamous “Ironman” challenge in Lake Placid, NY, as part of NBTS’ new Gray Nation Endurance program. Dr. Winograd “had never even run more than three miles (and even that was rare)” before July 2017. But after working with […] October 15, 2018
Guest Blog: How to Talk to Your Kids About Cancer As a father with an aggressive brain cancer, I’ve opted against elaborate metaphors and in favor of candid speech when talking about cancer with my children. In May 2016, I underwent an awake craniotomy to remove a large primary tumor from my brain. Two weeks later, my neuro-oncologist shared my diagnosis: I had an aggressive […] October 10, 2018
Public Policy and Brain Tumor Advocacy Updates From September 2018 Below are highlights of news and developments in brain tumor advocacy and public policy compiled by NBTS Research & Advocacy Manager Kacey Troy Ribnik and Director of Advocacy Lainey Titus Samant: New Increases for Medical Research Funding Congress recently passed a Fiscal Year 2019 (FY19) spending bill that includes increased funding for medical research. This action continues a […] October 3, 2018
#WhyNotDevin: Turning Pain into Hope for Families Christine Suau shares the story of her son, Devin, and the nine months her family spent treating his brain tumor. She talks about the rallying of a country to the cause of curing DIPG with the #whynotdevin social media campaign, the cost of care, and doing more for brain tumor research and families facing this […] September 28, 2018