Reflections on the Two-Year Anniversary of The Childhood Cancer STAR Act Two years ago, I stood in the Oval Office and watched as the Childhood Cancer STAR Act was signed into law. Observing this historic moment, I thought of the thousands of advocates, organizations, and children who worked tirelessly to support this legislation. From the first roundtable with the Alliance for Childhood Cancer, Coalition Against Childhood […] June 5, 2020
[RECAP] Brain Tumor Awareness Month 2020 Brain Tumor Awareness Month 2020 was bound to be a little different. The unprecedented nature of the COVID-19 public health crisis upended daily life for all Americans, including the brain tumor community, where the impact cut many ways. However, what we saw these past 31 days has been remarkable (if not completely unexpected). Despite many […] May 31, 2020
Sights & Sounds of Head to the Hill 2020 More than 1,300 brain tumor advocates flooded Congress with 4,567 messages asking for increased funding for brain tumor research National Brain Tumor Society’s Head to the Hill is the brain tumor community’s signature annual advocacy event. Normally, we unite with hundreds of volunteer brain tumor advocates — consisting of patients, survivors, caregivers, family, friends, clinicians, […] May 6, 2020
From the CEOs Desk: Spring 2020 Update and Plans Dear NBTS Community, Shortly after reports of coronavirus outbreaks emerged across the country in early March, NBTS provided an update to our community detailing plans to move all of our activities and events scheduled through June 2020 to virtual platforms. While we were saddened by the thought of not being able to connect — a […] April 24, 2020
Awareness Abounds: Inaugural Glioblastoma Awareness Day Moves & Inspires A week removed from the first-ever Glioblastoma Awareness Day (#GBMDay), the stories and experiences recounted last Wednesday, Jul 17, are still reverberating across the nation. As we said as the day drew to a close, the inaugural #GBMDay is a new beginning. Thanks to the brain tumor community’s fervent advocacy and action, #GBMDay became a […] July 24, 2019