News

This Is Your House: Head to the Hill 2019 We declared Brain Tumor Awareness Month 2019 as Brain Tumor ACTION Month (BTAM). As part of our effort to not only raise awareness, but to drive action that results in positive change for the brain tumor community, we themed the first week of BTAM as “Public Policy Advocacy Week” as we held our annual Head […] May 10, 2019

From the CEO’s Desk: Reflecting on 2018 Greetings and happy holidays to the brain tumor community, Before we turn over a new year, I wanted to take the opportunity to thank our amazing community of supporters, advocates, volunteers, and partners for making 2018 another year of great progress and momentum in the effort to conquer and cure brain tumors. Though we know […] December 27, 2018

Guest Blog: Six weeks ago, I had surgery to remove a brain tumor Six weeks ago, I had surgery to remove a large, surprise brain tumor. Now I’m a brain tumor advocate. A little over a month ago, I was at Disney World, not having a very good time. Which is weird, because I really like Disney – I’ve been five times. I was nauseous, with a nagging […] December 20, 2018

Public Policy and Brain Tumor Advocacy Updates From September 2018 Below are highlights of news and developments in brain tumor advocacy and public policy compiled by NBTS Research & Advocacy Manager Kacey Troy Ribnik and Director of Advocacy Lainey Titus Samant: New Increases for Medical Research Funding Congress recently passed a Fiscal Year 2019 (FY19) spending bill that includes increased funding for medical research. This action continues a […] October 3, 2018

Guest Blog: Team Theo – Moving On From Medulloblastoma and Paying It Forward I thought we would never face a challenge bigger than infertility. I look back now and realize how our journey to parenthood could have been a lot more difficult, but, at the time, it felt torturous. Then, we found our joy…IUI worked and we were expecting a baby boy. We had no idea what was […] September 17, 2018