How to Talk to Kids About Their Brain Tumor Diagnosis “Your child has a brain tumor.” It’s a phrase no parent wants to hear, yet more than 5,200 families will receive the news in 2023 alone. This Childhood Cancer Awareness Month, NBTS is sharing stories from families in the brain tumor community. NBTS asked four families, “When faced with a brain tumor diagnosis, how did […] September 16, 2022
The Mandell Family Turns Grief Into Action Following Toddler’s ATRT Diagnosis A spring break trip to Savannah, Ga., to visit family abruptly changed when 15-month-old Emily suffered a massive seizure. Emily’s parents, Brian and Katie, rushed her to the local ER, where a CT scan found a large mass in the back of her brain. An MRI confirmed the tumor the following day. “We were just […] September 6, 2022
Guest Blog: Finding Support to Help You Navigate Grief as a Member of the Brain Tumor Community My journey with grief began when my late husband, Steven, was diagnosed with glioblastoma in 2009. That day our hopes, dreams, and expectations for the life we had created for our family were forever changed. His death just 22 months later added to the grief I was already experiencing. Like so many, I was bereft […] August 30, 2022
Philadelphia Firefighter with Glioblastoma Blazes Ahead for Research Credit: Clem Murray / The Philadelphia Inquirer Sirens blared as firefighters descended upon Philadelphia Energy Solutions, the largest gasoline refinery complex on the East Coast, following a series of explosions in June 2019. Linda Long joined more than 100 Philadelphia firefighters to combat the blaze that took more than 24 hours to extinguish. “I got […] August 11, 2022
Q&A: A New Treatment Approved for Certain Brain Tumors In late June 2022, the U.S. Food and Drug Administration (FDA) granted accelerated approval to a new treatment combination that will now be available as an option for certain brain tumor patients. The approved combination of two oral drugs, called dabrafenib (brand name: Tafinlar) and trametinib (brand name: Mekinist), is for the treatment of advanced tumors […] August 9, 2022