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Mother Advocates for Improved Clinical Trial Access After Daughter’s Brain Tumor Diagnosis Whether hiking through trails perched atop twenty-foot cliffs or touching live sharks and stingrays, middle schooler Ava Q.E. was fearless — always volunteering to go first, thanks to her adventurous personality. It was a shock when Ava started repeatedly losing her vision for 5-10 seconds each time she stood up.  Her eye doctor ordered an […] September 19, 2023

From College Challenges to Clinical Trials: A Story of Resilience Little did Julia V. know that her troubling symptoms as an undergraduate were a precursor to a life-altering brain tumor diagnosis in college and a profound understanding of the patient experience as a health care professional years later. During her junior year at Washington University in St. Louis, Missouri, majoring in microbiology and anthropology, Julia […] August 25, 2023

New Brain Tumor Clinical Trials: July- December 2022 It can be hard to keep track of new clinical trial opportunities opening across the United States. There are many clinical trials actively enrolling patients, and this report provides a summary of the studies that have recently opened or started for patients with a primary brain tumor*. Follow the hyperlink above to learn more about […] January 20, 2023

[White Paper] Assessing Uptake of Remote Consent for Clinical Trials: Opportunities to Reduce Patient Burden A white paper from the National Brain Tumor Society and the LUNGevity Foundation Executive Summary While the COVID-19 public health emergency has caused major disruption to many clinical studies, one positive outgrowth has been the opportunity afforded trials sponsors, investigators, and regulators to implement elements of decentralized trials in on-going clinical studies. Decentralized clinical trials […] January 18, 2023

Q&A: A New Treatment Approved for Certain Brain Tumors In late June 2022, the U.S. Food and Drug Administration (FDA) granted accelerated approval to a new treatment combination that will now be available as an option for certain brain tumor patients. The approved combination of two oral drugs, called dabrafenib (brand name: Tafinlar) and trametinib (brand name: Mekinist), is for the treatment of advanced tumors […] August 9, 2022