News

Patient and Caregiver Navigation: Empowering the Brain Tumor Community National Brain Tumor Society (NBTS) empowers patients with brain tumors and care partners with quality, unbiased information and resources through its Personalized Support and Navigation Program. As part of the organization’s commitment to providing unparalleled support, NBTS welcomed the newest member of the Personalized Support and Navigation team earlier this year. Katherine Pahler, RN, joined […] October 18, 2023

Advance Care Planning 101 for Patients with Brain Tumors In the middle of your craniotomy, your neurosurgeon is tasked with making a critical yet unexpected decision. They consult with your loved ones in the waiting room. Thankfully, you had designated a health care proxy before surgery, and they made an informed decision based on the advance directive you signed. You wake up relieved to […] March 29, 2023

In Sickness and In Health: Becoming Julio’s Caregiver Julio and Liz P. ventured to Turks & Caicos earlier this year to celebrate a couple of friends turning 40. Julio, who has anaplastic ependymoma, suffered a focal seizure while snorkeling. While swimming in the crystal clear turquoise water just offshore, he experienced an aura that indicated he was about to have a seizure. He […] November 10, 2022

Tips for Coping with Grief Around the Holidays The holidays can be particularly challenging for bereaved members of the brain tumor community because of the cultural emphasis on making memories with family, gathering with loved ones, and being thankful and joyful. This time of year can also cause heightened emotions because of the reminder of activities, traditions, and celebrations one may have enjoyed […] October 31, 2022

NBTS Program Helps Patients and Care Partners Navigate the Brain Tumor Experience In moments of crisis and uncertainty, members of the brain tumor community reach out to the National Brain Tumor Society’s Personalized Support and Navigation Program. This team empowers brain tumor patients and care partners with quality, unbiased information and resources. How can the Personalized Support and Navigation Program help patients and caregivers? Provide clarity for the […] May 20, 2022