Published on May 20, 2022 in Support Services
In moments of crisis and uncertainty, members of the brain tumor community reach out to the National Brain Tumor Society’s Personalized Support and Navigation Program. This team empowers brain tumor patients and care partners with quality, unbiased information and resources.
How can the Personalized Support and Navigation Program help patients and caregivers?
While the team cannot provide medical advice and direct patients and caregivers on which treatment to do or whether to stay with a health system, they can provide resources about what is the standard of care for the patient’s particular tumor type, information on clinical trials or share a small list of health care institutions that specialize in neuro-oncology near the patient.
The patient navigation team frequently hears from caregivers, who have been unexpectedly thrown into a new reality. A spouse, for example, may struggle with household finances that their partner typically managed. A parent may now juggle work and welcoming an adult child into their home who needs help with basic tasks.
Ultimately, the team aims to empower patients and their loved ones to take the next step to increase their quality of life and access the best treatments for their situation.
To connect with our Personalized Support and Navigation Program, please email patientnavigator@braintumor.org. Our helpful team will respond to your questions and provide you with the personalized information and support you need.