News

Neuro ICU Nurse Runs Marathon to Commemorate 10th Anniversary of Brain Tumor Diagnosis Kayla S. pushed through the pain as she ran her final miles of the 2022 TCS New York City Marathon through Central Park when a man from the crowd ran up next to her and pointed to his craniotomy scar. He had spotted her Gray Nation Endurance®️ bib from afar and wanted to tell her […] March 9, 2023

Advocate Pushes for Improved Quality of Life and Increased Research Funding A busy working mom, Jyothi was no stranger to shuttling her two boys around for school and extracurricular activities. Her youngest son, Nitin, began complaining of headaches after playing tennis and also started to experience difficulties blowing to play his clarinet. A pediatrician suggested a CT scan to rule out anything more serious. “It was […] January 31, 2023

The Mandell Family Turns Grief Into Action Following Toddler’s ATRT Diagnosis A spring break trip to Savannah, Ga., to visit family abruptly changed when 15-month-old Emily suffered a massive seizure. Emily’s parents, Brian and Katie, rushed her to the local ER, where a CT scan found a large mass in the back of her brain. An MRI confirmed the tumor the following day. “We were just […] September 6, 2022

Turning Lemons into Lemonade After a Glioblastoma Diagnosis “Get your ice-cold lemonade!” These words reverberated through the air outside the Yale School of Medicine as Claire and Molly Lindenbach tried to garner sales for their “Lemon-Aid” Stand. The unusual sight attracted the attention of students and professionals working in the area.  Only four months earlier, Claire and Molly’s dad, Brett, worked as a […] August 4, 2022

Guest Blog: Training for the Boston Marathon Gave Me the Push I Needed by Mike Squillante A few hundred feet from the 2022 Boston Marathon finish line, I saw my pregnant wife, Michele, on my right-hand side. A rush of emotions overcame me at that moment. Only 235 days earlier, doctors diagnosed me with a brain tumor.  On August 26, 2021, my wife Michele, our then 8-month-old son Henry, […] April 25, 2022